[brochoParticipant]

Wishing everyone a very happy christmas and a very healthy new year and if it turns out to be wealthy too all the better !! Thankyou so much my cyber friends for being here when I need you most lots of love Bridget xx

[brochoParticipant]

Dear Mavis I too am in awe of the wonderful people I have met on this site. At the darkest times when it is sometimes hard to remain positive the lovely people on here lift you up again and make everyting seem less bleak with a kind word. To all the people who care for a loved one with mm thankyou for helping me to understand what it is like from the other side of the fence Wishing everyone a wonderful Christmas with all the people you love For those whose loved ones are no longer here remember they are with you always Lots of love and bring on the egg nog Bridget xx

[brochoParticipant]

Hi David you are definitely not alone with the memory problems ! I always had a good memory but since being diagnosed it s gone downhill all the way Sometimes it is so annoying especially when trying to remember names ! As for the going upstairs thing I do that as well nd like you remember very clearly when I have sat down again Still its a small price to pay for being here and at times it has advantages , when I forget something I really dont want to do for example Keep smiling David love Bridget x

[brochoParticipant]

Hi Catriona I am sorry your dad is going through such a tough time It is a shock when you hear them say you have relapsed but it wont take long before treatment begins to work and everything will look less scary for all of you. I am like your dad , my blood test dont show paraproteins either but the doctors look at everything including mri , x-rays and bone marrow biopsies The other thing is to make sure he tells them of any new symptoms or pain so it can be checked out I hope things go well for him please let us know how he gets on and try not to worry too much Best wishes Bridget

[brochoParticipant]

Hi Sarah it never ceases to amaze me how bloody useless banks are! You must be furious after doing all the right things they have left you in the lurch Ithink I would push for compensation as they are potentially damaging the good name and reputation of your business Mind you come christmas eve say bugger the lot of them and forget about them over christmas as you and your lovely family have better things to do Have you got a house full yet? It must be such a comfort for you having them all together, even if you might need earplugs at times!! My girls always stay on christmas eve with my eldest grandson, all three like things to be exactly the same It is like time disappears and they are little again This year the youngest has promised not to roll in at 5 am though hmmm wont hold my breath on that one !! love Bridget x

[brochoParticipant]

Hi Roisin I am so glad your father -in-law is in the right place to get the care he needs He is a lucky man to have such a lovely family watching out for him he must be very proud Wishing you a happy christmas and all the best for the new year love Bridget

[brochoParticipant]

Hi Min and Sarah the woman who described grieving so well must be an amazing person to be able to put it so well Although I havent lost a partner through death about six years ago Jeff had a mid-life crisis and left for a floozy with false everything and a sports car I can honestly say my heart broke and I was grieving for my life as it had been In my darker moments I believe this actually triggered the onset of myeloma But it is nothing like the loss you are going through I just wish there was some way I could help Sarah the scrapheap orchestra was amazing , the programme had me hooked and I was even conducting the 1812 !! Are you watching The Killing? It is as good as the first one , I am totally hooked on subtitles now too I often think of Gaye when I watch it as she was one of the subtitle gang too Lots of love Bridget x

[brochoParticipant]

Hi Jean I know exactly what you mean when you say Frank would go ballistic if he thought you were dicussing him because Jeff is just the same!! There have been a few occasions when I have spoken to a friend who then innocently repeated something very trivial boy was I in the doghouse ! Still thats the way they are and we love them anyway I hope you can get some rest tonight qnd some help for Franks pain tomorrow llove Bridget x

[brochoParticipant]

Hi Jean when will Frank realise he is not sparing you the worry by keeping things from you At least he did phone the hospital though It sounds as if it could be his ribs so getting checked out is very wise One thing I have learnt in the last 5 years is mever to ignore significant pain always tell someone. I hope itt is nothing too serious and he wont be in pain for too long love to you both Bridget x

[brochoParticipant]

Hi Craig poor Etta really is having a rought time no wonder she feels depressed The depression could be caused in part by all the medication combined with all the info she is trying to take on board VHave you spoken to her specialist nurse? They are there for you as well as Etta but could I suggest you have a chat with them about her depression, they are so much more approahable than doctors and are very good at getting things done . I hope things start to get better very soon for both of you Bridget

[brochoParticipant]

Hi Glynj I have not had radiotherapy to reduce the myeloma cells as such but I have had it twice for pain relief and to shrink tumours. It was painless very quick , the first session takes about an hour to set it all up but each session afterwards was about 15mins In my case it was completely successful , especially the last time when I had unbearable pain. Both times the pain disappeared and the tumour was no longer evident. I had only one side-effect which was fatigue and that lasted for a few weeks but it was bearable, it does depend on where you are treated though Before I had radiotherapy I had thought it had little use in cancer treatment nowadays but when I looked into it I was impressed how precise modern techniques are They are now able to hit the offending areas from all angles and without damaging too many healthy cells. The succcess rate for treating spinal tumours is excellent Good luck John I hope you get your radiotherapy very soon and those numbers come down love Bridget

[brochoParticipant]

Hi Sue and Michael so sorry your platelets couldnt get back to safe levels . I hope your doctors can come up with another treatment plan very soon It goes against the grain to be told there is no futher treatment when you have gone along with all the treatment so far If your doctor cant see any other way perhaps it would be a good time to ask for a second opinion love Bridget x

[brochoParticipant]

Dear Min thinking of you today on Peters birthday love Bridget xxx

[brochoParticipant]

Hi Eve lovely to get good news however small Enjoy love Bridget x

[brochoParticipant]

Hi Sue I am glad Michael is feeling a bit better since stopping Thalidomide. I think because it is a drug which has been ferquently used and I hadnt heard many negatives other than PN I underestimated its strength. It totally knocks me out but this may be partly due to the myeloma being active as well The other aspect for me is I have had about 4 years of chemo in one form or another and this is taking its toll on my body But its not something I can be choosy about , its a case of doing what has to be done to survive Yesterday was a bit dramatic and also a bit of a fright! As usual I went to town to collect library books for my mum. Although I am full of cold it was only a short trip and I didnt think twice. I couldnt park right outside the library and had to walk the length of the car park , hardly a marathon,by the time I got to the door I was so breathless I thought I was going to collapse The lovely librarian guided me to a chair, although I couldnt even speak , she was brilliant ! It took me a good ten minutes before I got some control of my breathing, to be honest I should have sat still for longer but I was so embarassed I trundled off!Needless to say after a few minutes I was gasping again The same lady came straight over to help bless herAt this point I thought I would be carted off in an ambulance which I did not want Luckily after a while I began to feel betterand got home as quick as I could I dont have a raging infection but it is ironic that the common cold nearly finished me off , a bit over dramatic but thats how it felt ! So no Bendamustine for me this week I do not want to risk feeling terrible again on top of the symptoms of this stupid cold There is one person who is very glad , my eleven year old grandson who is staying on Friday night , he has always spent one night of the weekend with me since he was born and he has really missed it , me too! Sorry that ended up being a long and boring post love Bridget x

[Author]

Posts