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Hi Roz you must be so frustrated at the lack of response when you asked for help , it doesnt seem right . I am sure Macmillan would be able to offer counselling , they have lots of experience that could help you as the partner of a cancer patient . I hope you can get some help very soon love Bridget x

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Hi Sarah you are so right we should all create our own legacy and memories while we can You and Gordon together raised a family and built your farm so his legacy is yours as well, you must be very proud. Lots of love Bridget x

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Hi Jo its lousy when it rears its ugly head again but you are in good hands at UCH so you have a good chance of beating the beast! Stay cheerful we are all with you lots of love Bridget x

[brochoParticipant]

Think you got mixed up with 0 and U Gill so heres UNDERNEATH leaves ATH Bridget x

[brochoParticipant]

Hi Dave you have had a rough time till now but I hope things will get a bit easier now you are on treatment Like you I had surgical reconstruction of my spine after myeloma destroyed 3 and a half vertebrae, luckily I did suffer any paralysis ,much to the doctors amazement! I am so grateful they could do the surgery otherwise I dread to think what life would be like You seem very determined so I am sure you wont be needing that crutch for too much longer Try and take it easy when you are feeling tired though , major surgery takes time to get over and coupled with chemo its a lot for your body to cope with The sct is tough but its worth it to get a decent remission , possibly complete remission , so you can be free of heavy treatment for a long time .A lot of us have had sct so if you have questions about it ask away ! As for tyhe nerve damage my advice is to tell them as soon as you notice any signs such as numbness or pins and needles in you feet and hands , they can lower the Thalidomide dose Good luck and dont forget there is support on here for you Bridget

[brochoParticipant]

Hi Dai thanks for the tip working from the outside in sounds a good idea I will try that If Susannah or Tina reads this perhaps you can help me with some info I have developed an angry red rash on my feet and lower legs , ending just below the knees. Did Patrick ever have this ? Has Michael had anything similiar Susannah? How is Michael? I am curious about it but not over worried and I will ring the unit tomorrow It could be either Thalidomide or Bendamustine but not sure which Thankyou love Bridget x

[brochoParticipant]

Short and sweet in a NUTSHELL —- ELL next love Bridget x

[brochoParticipant]

Just bumping this up for newcomers who may not be aware of the under 50s site Bridget

[brochoParticipant]

Hi Mavis sorry to hear you are feeling a bit down , I think its inevitable we all do from time to time . Hopefully the visit from your daughter and grandchildren tomorrow will put the sunshine back in the world. I treasure my time with my grandchildren especially George who is the eldest ( I so we are very close.was there when he was born) , he has always spent at least one night a week here as his mum is on her own. This year the remembrance stories seem much more poignant its heartbreaking to think of all the young lives lost and their families. I hope you have lots of fun in the next few days and you will be able to forget about the things you cant do I am sure the things you can do far outnumber them !! love Bridget x

[brochoParticipant]

Hi Penny welcome your wonderfully positive attitude to mm will get you through it !! Being young and fit will also be a big help Just be careful to rest when your body demands it as treatment takes it out of you But I have no doubt you will be running, cycling and mountain walking again before very long Good luck and if you need support there are lots of lovely people with all sorts of experience on here only too happy to help best wishes Bridget

[brochoParticipant]

Hi Belles it must be awful seeing your mum suffer but at least you know its par for the course Hopefully it wont last long and then she will start to feel better Hang in there it will be worth it in the end when she gets a very long remission and you can both get back to normal life love to you both Bridget x

[brochoParticipant]

Hi Eve great news it was a long wait but bet it feels worth it now!! Hope you and Slim have got your mojo back today and go and celebrate and RELAX a bit love Bridget x

[brochoParticipant]

If you did swallow a dictionary you might need AROMATHERAPY to help with indigestion!! Leaving APY love Bridget x

[brochoParticipant]

Hi Eve apo;ogies I didnt know they had added different colours The brown ones were preventative in a different way in that you need a certain level in yoour system , often when people feel feel better they stop taking it and because there is not enough if they have an asthma type attack the inhalers dont work. I had to laugh about your daughters complaint , my girls are just the same its hairy moles in our family all my fault apparently Children who would have them !! love Bridget x

[brochoParticipant]

Hi Caz good to hear you are doing well . Sounds like you have got it sorted, the tv days after steroids are essential!! It makes a world of difference if you have faith in the health professionals too , I trust mine as like yours they know my responses very well after five years and umpteen treatments Have they suggested a date for an sct yet, if you are having one ? Heres to the rest of your treament going well love Bridget

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