Good morning Gill well the image of you on a soap box certainly started my day wuth a smile !! Absolutely nothing wrong with having strong opinions so keep on telling us like is please Gill Not sure about Carry on Posting though the only character I could play was the Bernard Breslaw one , very large and dim!! Haha hope you and Stephen have a good day love Bridget x
Hi Min poor Peter I really feel for him , what a hard way to learn that lesson! I hope he begins to feel better tomorrow and they can zap him with anti-biotics quickly Your description brought back memories of my sct where I had a few days feeling very similar In fact I ended up staying in hospital for 5 weeks and I would not have felt able to go home any earlier! I hope you can get a bit of rest now you know Peter is getting the right treatment and that when he does come home it will all be behind him love to you both Bridget xx
Hi Eve the reason it took a few days to post my news, actually there were a couple. the main one being I didnt want to add any more gloom when we are all still reeling from losing Gordon and Gaye But I do believe this site is a place where you can share both good and bad news, sometimes being able to voice your darkest fears puts it all into perspective. It is not always possible to share those fears with people closest to me , my husband does not want the burden , my children need to get on with their lives without propping me up and my poor mum cannot accept the fact that myeloma is incurable and talks of when I am well Those are the reasons I value the support from my special cyber friends who understand completely and also give me an insight into how it feels to be a partner or son or daughter dealing with myeloma Having said that nothing is better than hearing someon elses good news so there is room for it all What gets me through the times when I have to hear unpleasant truths is facing it head on for a few days , sometimes being down but after that I put it to one side and just get on with what needs to be done The reason it was in this topic is nothing less than chemo brain Haha and not looking before I posted good job I am a bit more careful when driving !!! So heres to keeping on with the battle , for all of us ! love Bridget x
HiGill thanks for making me smile this morning , the image of you pulling that sock out was funny I have been thinking about how reluctant we are to go in to hospital and I agree with Stephen , time at home is precious and the thought of hospital food , beds etc is not a happy one I t was the hospice that wanted me to come in to look at my pain relief and my reluctance is a bit different there Its more a physchological thing , I do know hospices offer far more than end of life care but I dont feel ready to spend time in there yet, a little bit of superstition as well . Well heres hoping Stephen and I dont wait too long for radiotherapy .As for the rest of my treatment I trust the team at UCH to come up with the best option for me so its a case of waiting to hear from them Take care Gill love Bridget x
Hi Dai all I can add to this post is that I have just found my lost keys —–in the fridge!!!Enough said! love Bridget x
Hi Tom you have been missed but I am so impressed you are doing your kitchen . Elaine must be pleased to see the light at the end of the tunnel too ! It drove me nuts trying to find anything whilst my kitchen was being done but I love it now Onwards upwrds and sideways if necessary ! love Bridget x
Oh Min you must want to shake him till his teeth rattle !! I am sure he knows you are looking out for him but I bet its a case of trying to remain in control when he feels out of his depth . I hope you can talk some sense into him when he is feeling a little better To be honest your post has made me feel a little guilty I am not very good at getting myself into hospital and I prevaricate as long as I can Jeff keeps very quiet though and I think he knows I usually come round in the end Perhaps I wont be quite so slow in future though as I suppose he is feeling the pressure too I hope your weekend gets better Min and they sort Peters infection out quickly love Bridget x
Hi Susannah it really does seem unfair that Michael can only have Bendamustine as part of a trial . I have been tol it is one possibility for my next treatment , no trial , I am under UCH London. This postcode lottery for medication makes me so angry and the extra stress it brings we could all do without . I hope Michael is feeling a little better and his platelets are on the up love Bridget x
Hi Sally I am glad to hear your dad has begun treatment , fingers crossed he will begin to feel a bit better soon . He will probably still be tired when he is on treatment but he will learn to pace himself . Great that you have been in contact with social services and I am sure they will be a great help The Macmillan nurses are brilliant and very knowledgeable too for all those questions you forget to ask the doctor about Their main area of expertise is pain relief which will be a big help for your dad . Good luck for next week love Bridget
Hi Pauline this lousy illness plays havoc with all our lives! You must be very hurt by your husbands reactions but I think Jean and Eve have raised good points and as Jean said it has got better Perhaps you could contact his specialist nurse , in confidence , explain the situation to her (or him) and she may find a way to approach him about his feelings Its so very true that we always hurt the one we love and possibly you are just too close for him to be able to open up to you at the moment . I hope things get better for you both Bridget
Hi Sue really good to hear Michael is home at last and they have got that infection under control You must be sp pleased to have him home but I bet you are exhausted , no wonder you feel low after having the worry of Michael being ill and hospital visiting him. I hope that you can both relax a little now and please try and make some time for yourself it must be so demanding watching your husband being poorly and putting all your energy into helping him feel better but you are just as important!! Does Michael have GCSF injections to help keep his platelet and neutraphil levels up, I have weekly injections as my neuts and platelets were very low and they have kept me on Revlimid Take care and love to you both Bridget x
For Gaye ; This morning when I read that you had left us I cried . As the day has gone on I have been thinking of your wonderful warm nature and how your posts written with such warmth showed us what a caring person you were .When I first found this site I was unsure as to whether the forum was something I wanted to take part in , but the warm welcoming replies from all the lovely people on here soon cleared that up !! Thankyou Gaye for caring about us even when you were feeling very unwell and in a lot of pain For each and everyone of us you helped us get through the bad days and celebrated the good times It made me feel very humble to know that you were thinking of us all right to the end. You will be greatly missed but very fondly remembered , especially your wonderfully quirky sense of humour !Love and memories from your cyber friend Bridget xx
Hi Ivan I am glad you were seen on the ward it really does make sense for them to see you as they know all the relevant details of your illness and treatment . I can understand you being disappointed having to take time off work but sometimes its the best thing rather than struggling on and making things worse. We have all had these minor blips from time to time and you do learn to take them in your stride . I hope the Pregablin works for you , it worked very well for me within a short time love Bridget x
Thankyou Ellen for letting us know Gaye was a very big asset to this forum and she will be missed by a lot of people . I will remember her for her compassion and wonderful sense of humour even when she was going through very tough times Bridget
Hi Russell you must be reeling from the shock of hearing you have myeloma .The internet does throw up some scary facts , be careful about searching on there as information is often incorrect or out of date The average age is much lower than 70 now and although you are very young at 28 there are quite a few under 50s and several under30s , so you are not alone Try and ignore the survival rates too , that info is definitely out of date now there are so many new drugs and treatments . Myeloma is still incurable but treatments such as stem cell transplants can give you complete remission for many many years and being young and fitter gives you an advantageWhen you next see your consultant you will probably be given an outline of how they plan to start your treatment , relieving your pain will be top priority, there are several painkillers they can use and infusions to strengthen your bones and relieve pain too The helpline on this site is great if you have any specific questions and the under fifties group as well as the general discussion forum is a great place for support Life will get better Russell so hang in there and my advice would be to stick to this site for accurate info , they have several information packs they can send you too By the way I am not a seventy year old man either !!I was diagnosed at 51 , five years ago and I am still going strong! Bridget
