[brochoParticipant]

Hi Carol its great to hear your good news please dont heasitate to share good news with us it always lift our spirits and as you say lately there has been a lot of sad news .I hope you start to feel the benefits of a lower dose very soon although it does take a bit of time to get it out of the bloodstream Heres to lower doses for a long long time !!! love Bridget x

[brochoParticipant]

Hi Ivan I agree with Eve your hospital is the best place for answers to this one It could possibly be a side-effect and my advice would be to ring them for any new troubling symptoms rarher than your local gp Good luck let us know how you get on Bridget

[brochoParticipant]

Hi Min haha I love the image of the pir of you tip-toeing out of the hospital for big macs!! I bet Pter felt a whole lot better as Sundays are horrible in hospital, apart from the lunches!! I hope he gets home today for a few days of normality , which you must both be desperate for. love Bridget x

[brochoParticipant]

Hi Annette its good to hear from you and no you were not at all boring Great results from your treatment plan and it certainly sounds as if its made a big improvement in your life I think the fatigue is hard to avoid , it either comes with mm or with the drugs we take , I know I have become a champion cat napper Heres to you staying well for many more years best wishes Bridget

[brochoParticipant]

Hi Sue thats wonderful to hear you are still in remission 2.5 years on and for many more years yet hopefully. I know what you mean about living with the uncertainty of myeloma but I suppose all we can do is live each day to the full and enjoy every moment As you say never give up Heres to staying well love Bridget x

[brochoParticipant]

Hi Susan thankyou for your kind words.I have stopped ranting now, and feel much better for it, and waiting for my clinic appointment to know what the plan of action is How are you feeling? Are you still in remission? love Bridgetx

[brochoParticipant]

Hi Cathy welcome to our merry band of people from all walks of life! I am the pateint and my partner is Jeff, I dont like using the word carer, we are in this myeloma journey together There are so many lovely people on here who can help when you need it and the helpline is brilliant too. I was diagnosed 5 years ago and I can remember the fear and confusion as if it was yesterday But things do get easier as treatment goes along you will begin to understand more and all those medical terms wont seem so frightening Like your partner I hadnt been sick before treatment, just in incredible pain for about a year,and the initial treatment was hard, leaving me exhausted most of the time. The best advice I can think of is to listen to your body and rest when you need to Its no good pushing yourself as you will just be even more tired, so accepting you cant do do everything you used to helps a lot Life does become more normal in the end , even if it is a little different Good luck to both of you I lokk forward to hearing from you Bridget

[brochoParticipant]

Hi Eve I may be able to answer part of your query Blood tests give overall readings but bone marrow can form little pockets or cumps of myeloma. If the sample is taken slightly to the left or right for instance the result could be much lower In the beginning my paraprotein readings seemed to accurately reflect what was going on butafter a short while they used the serum fee light chain test About 18 months ago on my second relapse , and a new tumour , they realised the pp readings were useless in my case Recently following an abnormal serum free result made them realise that mri was the only way to work out what was going on My consultants have always looked at the whole picture , starting with how I am feeling and any new and persistent painso the delays havent been too long I believe this holistic approach is much better than getting hung up on blood test numbers and for a long while I havent bothered worrying about differences in test results It will be interesting to hear what Slims doctors say when you ask them love Bridget x

[brochoParticipant]

Thankyou so much Debs and Lorraine it never ceases to amaze me just how lovely you all are When this bloody illness throws c**p at us a message on here can make so much difference lots of love Bridget x

[brochoParticipant]

Hi Min as awful as it is for Peter to be away from home , and you I am sure you are right about him needing to be there I do understand how he feels about not being in control and its always worse when you are feeling c**p Hopefully this depression will allow him to be more honest with the professionals and let him build a better relationship with them . I bet he hasnt even realised how much extra pressure his silence puts on you as well Silly sod !! Hopefully they will get this infection under control quickly so that he can begin to build his stregth up again Min try and get some rest while Peter is in hospital , I know its difficult when you visiting every day but you must be exhausted by it all lots of love to you both Dont forget the good times are just around the next corner love Bridget x

[brochoParticipant]

Haha Mavis no hard stuff for me I am afraid , today I just decided life is too short to be gloomy all the time and have been in a very silly mood all day! I hope you have had a good day too love Bridgetx

[brochoParticipant]

Hi Dai your answer gave me a good laugh thanks, Of course the simple answer is I am just barking mad!!Tee-hee Mind you morphine is the stuff of dreams or so they said love Bridget x

[brochoParticipant]

Hi CN thankyou for this it certainly sounds promising and shows you shouldnt ignore things just because of their previous application Heres hoping it doesnt take as long 10 years to reach patients . Take care love Bridget x

[brochoParticipant]

Good Morning Gaye if you are popping in this might make you smile ! Last night I had a restless night full of strange and very vivid dreams Guess what you turned up in one! I dreamt that you were looking out onto a lovely garden from your room But each shrub and tree wasblossoming with bras of all shapes sizes and colours !! You and I then had a very serious chat about the best way to grow them !! Well if Freud were around I think even he would have trouble working that one out !! All I can think is your comments about enjoying the garden and giving up on bras prompted such a strange dream Who knows though perhaps they will become the new garden decoration Tee-hee Ihope this made you chuckle as much as it did me , if not I apologise for being weird!! Lots of love Bridget x

[brochoParticipant]

Hi Eve thanks for that made me chuckle ! That woman probably didnt even realise what she had said!! As long as we can keep laughing we will be ok love Bridget x

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