Hi Helen I am glad your mum phoned the ward , I used to hesitate about phoning for advice but then I quickly realised there is no point suffering when there is usually a solution to be had . I was diagnosed 5 years ago after a year of awful back pain. Eventually I was diagnosed and by that time 3 vertebrae were destroyed, I then had a spinal reconstruction and my back is now mostly metal plates and rods . I had an sct in 2007 and had 18 months partial remission . When I first relapsed I went on the Myeloma XTrial which didnt work out great for me Second relapse was a few months later and I have been on first Velcade and now Revlimid since then Like most of us there have been a lot of ups and downs , I am not as mobile as I was nor as active but life has a sort of normality , different than before but myeloma doesnt fill all my days So tell your mum things really do get easier as you go along and you get to know your own limits One thing I learnt fairly early on is to listen to your body and rest when you are tired, no point in struggling to do something when it will still there for another day The other thing is never to ignore any new pain that persist , always mention it to the nurse or doctor who can check it out , saves a lot of middle of the night worrying too Take care Helen and best wishes to your mum love Bridget ps sorry for rambling
