[brochoParticipant]

Hi Eve how you must have wanted to give him a clout!!A similiar thing happened to me when my youngest daughter was diagnosed withCystic Fibrosis , someone who I thought was a good friend said it would have been better if she had died!! I have not spoken to her since!! How old is your grandson? It makes me so cross when people cannot see further than the end of their nose !!You must be very proud of your grandson and I bet he is able to handle stupid remarks well having you for a nan !! love Bridget x

[brochoParticipant]

Oh Roz what a stupid stupid man to say something like that to you Its a wonder you didnt punch him on the noseJust goes to show even the healthcare professionals get it wrong sometimes love Bridget x

[brochoParticipant]

Hi Mavis well I came home from clinic with a whole bag full of pain relief today !!The Macmillan nurse upped my Oxycontin dose to 70mg yesterday and I now have some big plasters filled with local anaestheticto put on my back plus some Pregabilan Apparently Pregabilan is the posh version of Gabapentin and has fewer side-effects , also much more expensive too so my consultant is not sure if she will be sllowed to prescribe it again!!By the time I have dosed myself with all these drugs I will rattle !!! As long as they dont knock me out too much as I doze off enough as it is !!Take care love Bridget x

[brochoParticipant]

Hi Dai glad to hear the pn is lessening and your bloods are behaving It wont be long before you are playing comfortably again , I cant imagine anything keeping you from your guitar for long !! love Bridget x

[brochoParticipant]

Hi Keith good to hear all is going well Iknow how you feel about getting away from blooming hospitals and all the stuff that goes with it!!Have a good holiday and it will boost your spirits ready for the sct and after that a very long remission Take care love Bridget x

[brochoParticipant]

Hi Mari wow! Thanyou for sharing with us it really does lighten the load to hear of someone doing such an amazing feat after all he has been through Mind you I think you played a big part in his recovery , you make a great team !!Steve must be a very determined man , I cant even ride a bike to the end of the street not due to myeloma just have never managed to ride one !!!Pathetic I know Heres to a very very long remission and many more bike rides love Bridget x

[brochoParticipant]

Hi Min yes they can write scripts but as I am at clinic tomorrow I think she was being professionally polite , if you know what I mean ! Sorry to hear Peter has had to be admitted again, you must be at your wits end Ithink you can just ring yourself once you are on their books In the short time I have known my Mac nurse I would certainly call on her , as she said today she is the one to call if there is a crisis . I hope they can get Peter sorted very soon so he can come home Try and get some rest too Min .lots of love Bridget x

[brochoParticipant]

Hi Angelina reading all these lovely ideas on here has made me realise I too want to leave some memories for my children and grandchildren So tomorrow I am off to buy a notebook and go where the memories take me Thankyou for sharing with us and prompting me .I am sure your girls and Johnare going to love doing their books lots of love Bridget x ps God wont telephone it will be a text !!

[brochoParticipant]

Hi Wendy so glad you are home and feeling better There really is no place like home is there Stay well love Bridget x

[brochoParticipant]

Thankyou everyone for your support as always it makes the world of difference My lovely and very wise Macmillan nurse came today and has suggested increasing the Oxycontin to 70mgs morning and night plus increasing Severadol to30mgs Fingers crossed it works She was rather annoyed with the doctor for ignoring her other reccomendations for patches to put on the site of pain and Pregablin. I explained that this doctor is always running late and by the time he sees me he is rather harassed and probably didnt even see the rest of her letter !! Talk about smoothing ruffled feathers tee-hee ! love Bridget x

[brochoParticipant]

Hi Michelle sorry to hear mum has had setback but it sounds like her doctors are on the ball!! I am also on Revlimid and I have been told Cyclo may be added if Revlimid beomes ineffective on its own Could the P drug be Polpomanide( not sure of spelling ) if it is Gaye is on this one I believe. Good luck but with your positivity and your mums determination luck is only a small part love Bridget x

[brochoParticipant]

Hi Sue just want to wish you luck for Friday I hope they come up with a good treatment plan . Crossing fingers toes and anything else for you love Bridget x

[brochoParticipant]

Hi Heath I had not heard of PCL thankyou for letting us know Your wife must have been a very determined lady and I am so sorry she is no longer with you.All the best for the future love Bridget x

[brochoParticipant]

Hi onlyme good luck to your mum on the next stage of her mm journey Fingers crossed Velcade will do the trick !!love Bridget x

[brochoParticipant]

Hi Clopot brilliant result with Revlimid!! Do you have any nasty side-effects with it and do you take Dex as well? long may it continue love Bridget x

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