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Hi Gill I understand why It really is a small world though and thank goodness there are lovely people in it !! love Bridget x

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Good Girl!! She must be very persuasive and what a lovely man too!! love Bridget x

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Hi Liz I hope Kev gets to come home soon it sounds as if he is over the worst so the only way is up now!! Just a word of warning though its not a good idea to sit out in sunshine after an sct , a lot of the drugs they give us advise against it, so make sure Kev covers up in the garden We bought my father-in-law a gazebo so that he was protected but still able to enjoy his garden. love Bridget x

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Hi Tony well you certainly didnt have to rush into treatment which can only be good ! I was on the Myeloma X Trial last year and on the Cyclo arm It was ok , the usual side-effects but manageable However within 3 months I had relapsed again so needed more aggressive treatment and came off it Have you checked out the Myeloma XI Trial , there are a few people on here taking part , I can only remember Debs at the momement Good luck in whichever treatment you go for Bridget

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Hi Min thankyou for the info and I hope it keeps those bugs at bay love

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Hi Keith good to hear things are still going well for you. As for the sct well at least it wont be as scary as last time! It does seem as if people are not having to spend so lo long in hospital post transplant these days so thats a bonus!!Keep on keeping on Keith ! love Bridget x

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Hi Sarah crikey 230 lambs!That sounds exhausting, I am so impressed .It must be very rewarding though How long have you been farming? I have always admired the hard work it takes to look after livestock but could never see myself managing even before mm , too lazy! I hope Gordon feels better soon love Bridget x

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Hi Min sorry I cant help but I have never heard of it ,what is it for? love Bridgetx

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Hi Mark hang in there and hopefully they will pump lots of anti-biotics into your dad to get rid of his chest infection. I really hope you get some good news soon As Min said try and stay positive and dont forget we are all here for you Bridget

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Hi Dizzyliz ( love the name!) welcome I am glad you found us. It must be very hard watching someone you love go through a procedure which makes you feel so ill no wonder it has got to you From this point though things do get better , once the blood counts start to rise he will begin to feel better , although it can seem ages before that happens it wont be too long before he is home Lppk after you as well though ,as you say you have been the strong one but you do need to make sure you dont get too exhausted by it all Try and make time for something that has nothing to do with hospitals and myeloma even if its only a cuppa nd natter with a friend Take care Liz and best wishes to you and Kev It wont be long before you have some normality back and all this will have been worth it Bridget

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Hi Fiona lovely to hear things are going well for your mum Its amazing how things can change in just a short space of time Good luck with your running , I am in awe as even before myeloma I have never been able to run!! Do let us know how you get on and I will look out for you on tv Best wishes to you and your mum love Bridget x

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Hi Eve I am glad you feel better after getting that off your chest and thats one of the things thats so good about this site!! I do get frustrated by all the waiting around, the worst time is when you are waiting to go home from hospital and have to wait hours for drugs!! But now I try not to get too annoyed as it just makes me feel worse and doesnt change a thing . Hope you have a better day tomorrow and we get more sunshine love Bridget x

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Hi Mike and welcome , sounds like you were lucky being picked during tests for diabetes , so many of us have to wait a long time Good luck on the trial , you will be very well looked after just dont hesitate to let them know your side-effects if you get any, doses can always be altered to suit you Heres to your fiftieth , its the new 40 you know !!! Bridget

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Hi Eve I believe you are right in thinking the dose is determined by our doctors , based on individual circumstances. When I was diagnosed I had a massive tumour from my spine into my ribs therefore I was on 80mg dex twice a day for 3 weeks to reduce the tumour, thankfully I have not neede such large doses since However in both my relapses I developed new tumours so the dex dose was increased . I also believe the effects of dex can be changed according to which chemo drugs are taken with it When I was on velcade and dexthe side effects were not as severe as now when taking Revlimid with itThis could be because of all the chemo I have had , more or less continually as well I suppose The main diffrences though are that we all react diffrently in just about every aspect of myeloma so it would be difficult to have a standard dose for everyone love Bridget x

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Hi Jet the taste thing happened to me when I first had it Ihad been in hospital for 6 weeks and after my back surgery was on massive doses of dex, 80 mg twice daily, needless to say this made me very greedy!! Some friends were begged to bring me something savourywhich they did bless em!! Well I ate a whole bag of baby bells before they had sat down but out of politeness thought it better to have the pickled onions after visiting was over. No sooner had they left and after a heroic battle with the lid I scoffed one , onlyto spit it right out !! It tasted of soapy chocolate,completely disgusting It took 2 years before I could eat anything vinegary again Still I couldnt help laughing wondering what the other patients thought and my friends just about fell over laughing!! Still thats one thing I have learnt living with mm there is always a funny side!! love Bridget x

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