[brochoParticipant]

Hi Jet I am glad you find dex so exhillirating , unfortunately I am the polar opposite Apart from the insomnia I retain fluid and although I was on the same dose as you Ido have a hamster face The last few months being on Rev and Dex have been awful for the first 5 days of the cycle My whole body was painful and tender for days so now I am going to try taking dex on one day oeach of the 4 weeks, fingers crossed it will work .I was diagnosed 4 years ago and have always had problems with dex ,the worst being how it affects my taste buds so everything tastes foulMy feeling would be you are one lucky lady and there are probably more who dont have your luck so enjoy! love Bridget

[brochoParticipant]

Hi Gill poor Stephen what a bummer!( oops soory bad pun!!). What about anti-sickness injections , might make it a little more bearable love Bridget x

[brochoParticipant]

Hi Gaye you are right I think but its a lot easier to live with it if you arent in pain, I do hope they come up with something soon for you . No you arent alone we have the volume up too , all adds to the atmosphere love Bridget x

[brochoParticipant]

Thankyou Gill its good to know somebody else has the same hobby as me !! Tee-Hee love Bridgetx

[brochoParticipant]

Hi Bluebird the there are quite a lot of people who had to wait months for a dignosis.In my case it was about a year , during which time 3 vertebrae were destroyed and it was only major reconstructio surgery that prevented me from being paralysed. The trouble is myeloma is a rare cancer and few doctors such as gps and junior hospital doctors will have dealt with it! That is why mmuk campaign to make doctors aware of myeloma is so important love Bridget

[brochoParticipant]

I am so sorry to hear about your brothers, it must be very hard to accept they arent there. Hang onto all those good memories you have which will be with forever and just take it a day at a time love Bridget

[brochoParticipant]

Hi Sarah the last episode is on bbc i-player for a bit yet The new gets good reviews too Roll on autumn love Bridget x

[brochoParticipant]

Dear Gaye that sounds hopeful I cant remember where Mr Malloy works but he is a specialist in myeloma fractures , I think it may be the Royal London though. Apparently when he looked at my x-ray there was a lot of head shaking .He couldnt believe how little of my spine was left!!So surgery would be too dangerous for me but I really hope they can help you soon love Bridget x

[brochoParticipant]

Dear Gaye it seems so unfair that you are still suffering an unbearable amount of pain despite the rt .I suppose it would be risky repeating the rt but has anyone suggested any other options ? Is surgery possible ? There must be something they can do and I hope they dont keep you hanging on too long Its a good job you are a tough old bird like me!! As for the programme it was certainly gorier than the swedish one , but then I suppose being french it was going to be more over the top drama! Still I watch again next week Apparently the Killing 11 will be on in the autumn hooray I hope you have a nice day sunshine here lots of love Bridget x

[brochoParticipant]

Hi I too confess to reading the mail but I will say in my defence it is only because its the only free one now!! It was a good story though love Bridget x

[brochoParticipant]

Hi Jean that was a good start to my day thankyou As the daughter of an irish woman I have grown up well used to irish humour ! love Bridgetx

[brochoParticipant]

Hi Mark sorry to hear your dad is going through a togh time As others have said ringing the myeloma helpline will be helpful for you , they are very knowledgeable should be able to answer your questions The survival rate is a difficult one as we all react diffrently to our illness but I read recently that 4 to 5 years is now expected but of course many people live with myeloma for a lot longer There are also a lot of new treatments in the pipeline which is good for all of us.Hopefully they will begin tests so they can start your dads treatment soon although it does take a bit of time as they have to wait for all the results so they can work out which treatment is best .Your dad will have a myeloma specialist nurse who will also be able to give you lots of information Best wishes to you and your dad and please let us know how he gets on Bridget

[brochoParticipant]

Hi Gill what a lovely , caring girl your grandaughter is , you must be so proud of her Thankyou for telling us about her sometimes we do need reminding that not all kids are like the ones featured in the daily mail!!love Bridget x

[brochoParticipant]

Hi Ozzy welcome to the best support group there is .You have certainly had a very eventful year!Its hrad to say how long before you feel normal again as we are all different In my case it took almost 6 months but I think that was because I had major surgery a few months before my sct What I would advise is not to overdo it , your body will let you know when you can tackle moreAre you able to go back to work part-time at first? It might be a good idea to see if you can stage your return Good luck Bridget

[brochoParticipant]

Hi Shirley absoultely brilliant news!!!Long may it last Wont be long before you can put myeloma to the back of your mind and just enjoy life love Bridget x

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