[brochoParticipant]

Hi Sharon you must be so frustrated I do hope your leg gets back to normal soon You have done well on oromorph I could only take it for a few days after my surgery as it made me fall asleep all the time , sometimes in mid-sentence! Just a thought have you applied for DLA? You would certainly be entitled with your mobility so compromised and if your leg was taking a long time getting better you would be eligible for a motability car with the higher rate mobility componentForgive me if you are already aware of all this Your post reminded me of how I felt after my back reconstruction As I have always loved fashionable shoes my daughter bought me a beautiful pair of red high heels which were on my bed when I came back from surgery and when I got home I used to wear them whilst sitting down !!Unfortunately my days of high heels are over now but I still have those lucky ones Keep on keeping on love Bridgetx

[brochoParticipant]

Hi Gill that was priceless !!As someone who cant queue without scowling when I am on the lovely dex it strikes a chord!! Perhaps Stephen should wear a hat and glasses for a while in case he is on a wanted list !! Thankyou for starting my day with a smile love to you both Bridget x

[brochoParticipant]

It took me a few goes to post my reply to Ron because of inappropriate content!! Eventually realised it was the very hot place some bad people go to when they die !!Haha how much more succinct a four letter word is !Bridget

[brochoParticipant]

Hi Ron sorry but Dexatude is a made up word to describe the awful creatures we become sometimes when we are on dex!! It can make you very short tempered at times and impatient ,not very nice for the people around us Hopefully your wife wont have these side -effects though In my case the higher the dose the more likely it is I will be not very nice to live with for the days when I am taking it and its not something I can control which is really annoying love to you both Bridget x ps perhaps it should be in the dictionary , I think it was Gil who first coined the phrase

[brochoParticipant]

Hi Kay I am glad your doc didnt keep you waiting all day Hopefully you wont have any problems I start Revlimid in a couple of weeks so you wont be alone love Bridgetx

[brochoParticipant]

Hi Keith thats a strange one ! I didnt have anything like that on velcade , mind you I wasnt on it as long. I always find dex is the main culprit for taste changes but I would have expected that to be from the outset . Hope someone else can help love Bridget x

[brochoParticipant]

Dear Jenny what a terrible time for you all I am glad your dad is in the hospice where he and you will get the best possible care . I hope you do take up the counselling when you are ready to it will help you come to terms with your dads decision I am sure My thoughts are with you love Bridget x

[brochoParticipant]

Thank you everyone your support makes everything more bearable. The pain hasnt gone yet but I have had a few hours respite over the last 3 days. I wasnt expecting an instant cure so I am not disappointed Gaye your journey to Barts must be exhausting I could have Zometa at my local hospital bit to be honest its been a long while since I had any treatment there and I havent got complete faith they are up to speed with my stage of mm. Sharon I hope that numbness goes soon it must be very worrying , hopefully its a case of your nerve endings needing time to settle Are you able to drive again? Not being able to drive is one of my fears as losing my independance would be very hard to take . Jeff drives my car to London and I do get a bit twitchy sometimes ( not as bad as the girl in the Yaris ad though!! Haha at least I dont think I am). I would be lost without him really love to you all Bridget x

[brochoParticipant]

Hi Min sorry to hear Peter hasnt had a good start to his treatment , fingers crossed tomorrow will be better. I hope your sciatica is gone for good , I had it many years ago and it is terrible love Bridget x

[brochoParticipant]

Hi Jo lovely to see you at last !!! Doesnt it feel great when you conquer technology? Dont worry about the moon face it irons out the wrinkles !! love Bridget x

[brochoParticipant]

Hi everyone well thats my radiotherapy finished !! I have been zapped for five days and it was only on the third that I found a button-through dress to spare my dignity !! As some of you warned I am exhausted , this morning was the hardest I just sat still for hours when I should have been getting ready , so tomorrow morning is a pj one !!In a couple of weeks I start on Revlimid plus dex— Grrrr! Also my doctors are going to discuss my case with the surgeon so surgery may still be an option I realised I must be a real pain for my doctors as the poor woman apologised not only for me having to have dex but also felt she should justify the need for another biopsy ( to look for genetic markers to tailor my treatment no less!!) Well I really must try not to moan as much , but then again it is fun sometimes love to you all Bridget x

[brochoParticipant]

Hi Min hope Peter does well on Revlimid and will be watching out for your posts as I start mine in a couple of weeks too It would be nice if they only send me to sleep at night my little power naps are taking over my days as it is so if Revlimid makes me any more dozy I might not even manage to drink a cuppa!! Lucky Peter I am going to be on 20 dex for 4 days a cycle and am hoping this can be reduced afterwards For some time now my doctors dont even mention my pp levels except to say they are low , as they dont have much bearing on how active my myeloma is at all The down side of this another bone marrow biopsy very soon yuk!! It was a bit of a hassle getting the prescription filled today as my consent forms had gone astray , poor Jeff had to run around the hospital trying to get it sorted bless him!! As for the packaging I do think they should wrap it in pretty bows or something given the cost !!Love your new pic who is it? Love to you both Bridget x

[brochoParticipant]

Dear Gaye I am glad you got week one out of the way without any problems apart from those pesky dex!! The foot massage sounds wonderful too a bit of pampering is just the thing when you feel lousy . I hope they get that back pain sorted very soon and you can dance the night away or run the marathon if you want !! love Bridget x

[brochoParticipant]

Dear Gaye how beautifully put Thankyou for sharing with us To a certain extent I am still in denial for a lot of the time too . It was over a year before I even looked at this site In the beginning , like you , I coped by dealing with it on a daily basis and trying to organise everyone else in the family ,as usual. As time has gone on I have opened up more and this is due to the wonderful people on here Your lovely caring nature and wise words have helped on more than one occasion when I have been feeling down. I think we all change and grow through our myeloma journey and the understanding of myself and others that has come with it is very precious and something I wouldnt change Heres to a long future for us all love your on-line friend Bridget x

[brochoParticipant]

Hi Kay ouch!! there is nothing worse than a painful bmb.Do you have sedation? I would never have a biopsy done without sedation and it should be available to you Good luck with your results love Bridget

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