Good morning Roz no wonder you are exhausted, even the fittest of people would be drained by everything you are going through So Andrea is probably right you need to recharge your batteries to fight the next battle for Michael Who goes to see Michael on the days you dont? I was wondering if they could speak to the nurses as well to help you get them to understand Michael is not himself,the more people the better really Is there a patient advocate service? I feel you need someone who can , a professional who could help in things like making sure meetings are kept especially the one you were due to have the other dayIts unforgivable that you have both been left in limbo yet again and if I were in your shoes I would take a break to gather all my strength then demand an urgent meeting with the consultant whose duty it is to keep you fully informed as to plans for Michaels treatment .I hope you are feeling less uncomfortable today and you can rest without feeling guilty because you shouldnt at all !! We are all behind you Roz hang in there , get your strength back and demand your due , for you and Michael love Bridgetx