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Good one John this made me laugh out loud a good start to the day thankyou Shame I am useless at remembering jokes but I will rack my brains Hope you are having a good day love Bridget

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Hi Jackie no wonder you are finding it difficult anybody would Its hard to give you an answer because myeloma is such an individual illness but a lot of us have ongoing pain due to bone damage .In my case I lost 2 vertebrae completely and had to have my spine stabilised with plates and rods , I have bone damage everywhere except my left arm However there is no reason Norman should be suffering as pain management is a big part of the treatment for mm I would ask for an appointment with either the consultant or speak to the specialist nurse to discuss his pain relief medication as soon as possible . I take mst morphine which is a slow release tablet ,each lasts 12hours , on top of that I have severodol for breakthrough pain When I see my doctor the fisrt thing we discuss is whether my medication is dealing with the pain there are several drugs which can help so Norman doesnt have to suffer You certailnly arent selfish I do think its harder for the people we love to watch us going through it but in time things do get easier though and life can return to some sort of normality . I really hope you feel you can post on here when you need to there are lots of lovely people to give you the support you need as well as Norman Please let us know how you get on love Bridget

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Hi John what a shame Cecilia is having problems with her blood counts, fingers crossed she will be able to have her next dose Often a short break does the trick .I had the same problem last year and I had GSCF injections in between doses which brought my bloods back up to a level where I could carry on with the treatment Its always good to hear of the new drugs in the pipeline , mind you Bendamustine doesnt sound so promising now which is a shame Good luck for next week and please pass on my best wishes to Cecilia ( lovely name ) Bridget

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Hi Fiona I can understand how difficult it must be for you if your mum and dad dont want to talk about her myeloma, thats what this site is so good at , supporting you and your mum and dad if they want it so carry on posting please . Sometimes it takes a long while for the reality of living with an illness to become something manageable ,so give mum time and she may be more open with you Hopefully the stem cell transplant will be a success this time which will let her see that life is still good even if it is different than before. The other reason they may not want to talk is because they dont want to worry you too much ,especially as you have a new babyTry and be patient with them and dont feel guilty if you cant help as much as you want to I am sure you have your hands full Ant questions you have post on here and there will always be someone who can help . I must admit Idont tell my children everything about my treatment or how it affects me as I dont want their lives to be ruled ny myeloma as well as mine Take care and try not too worry too much love Bridget

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Hi Tom hope you and Elaine have a great holiday , will recharge your batteries for the cold winter love Bridget x

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Hi David and web team I had the same problem when trying to reply to Toms post Bridget

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Hi Gavin I am not too sure I can help much with your decision as each of us is different . I did go for the chemo option , but in my case the damage was extensive and severe and I was stage 3 when diagnosed. If your general health is good and you havent too many related problems then you may choose to wait ,but I would discuss it further with your doctor who knows more about you As for chemo some has been better than others for me .There a quite a few people who have been able to carry on working and had minimal disruption to their lives whilst on chemo Good luck with whatever you decide and please let us know Take care Bridget

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Hi Min I am lucky as I have only been breathless a couple of times ,iy must be a bit scary.I do occasionally have nose bleeds , nothing dramatic and usually when my platelets are a bit low .Good news about the kyphoplasty ,I just wish it was suitable for me but not so My mum who is 84 frequently tells me off for lifting anything as she worries I will break something , bless her ! One thing that has surprised me this week is how rotten I have felt on my drug free week The first cycle was fine but others have said this week is their worst also so I am not really looking forward to the next one Hope you have a good weekend and best wishes to Peter love Bridget x

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Hi Stuart a big thankyou to all of you the site is becoming even better each day!!Its great that you are taking our ideas on board too Thankyou again Bridget

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Hi Michelle so pleased mum is doing well and still going to disney on ice , it will do her the world of good It does take a bit of time for the reality of mm to sink in but once you accept it you can put it to the back of your mind and get on with living Your mum sounds like a very strong minded lady which will keep her going Please pass on my best wishes love Bridget x

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Hi John welcome to the crazy gang !!! I think the best thing about this site apart from the wonderful support we give each other is the humour and refusal to be ground down by this lousy illness Take care Bridget

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Hi Nicki so glad to hear Sam is doing well please pass on my best wishes What a lovely photo of the two of you . Hopefully Sam wont have too many roblems , lack of appetite and and energy are fairly standard just make sure he doesnt overdo it when he gets home love Bridgetx

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Hi Kevin you really have been through it this yearheres hoping that was your last hospital stay for a very long while !! Constipation is the bane of my life too but luckily it hasnt been bad enough to need to be admitted. Mst morphine is brilliant , makes life much more bearable Take it easy love Bridget

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Hi Norman welcome to our gang sorry you find yourself here though As Min has said you will always get answers on here and all the support you need from people who understand and care . You definitely should not have to put up with pain ,I have extensive bone damage and take mst morphine and severodol for pain Pain relief is the first issue dealt with in clinic . Look forward to your posts Bridget

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Hi ( sorry you didnt put your name ) trouble is myeloma is so individual its hard to compare treatments In my case my doctors take the whole package into account before suggesting treatment , which means scan results , bone marrow biopsy as well as paraprotein levels.If you feel comfortable with the consultant the perhaps asking the question outright would reassure you The specialist nurse is always a good person to ask exactly this sort of question and may be less intimidating Good luck on Thursday /please let us know how you get on Best wishes to you both Bridget

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