RochfortBridget

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Viewing 15 posts - 121 through 135 (of 1,086 total)
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  • #85159

    brocho
    Participant

    Hi Christine and welcome I am sure you will find this site as invaluable as I do. Sorry I cant be much help re collapsed vertebrae though. In my case I had 3 vertebrae completely dstroyed before being diagnosed, the doctors used to shake their heads in amazement because I was walking around , mind you the year of absolute agony was no fun Before I had any treatment for myeloma I had surgical reconstruction to my spine which involved metal plates and rods on three quarters of my back. Because the diagnosis took so long I have very extensive bone damage and as a result Iam not able to walk far or stand for too long and I have been on varying doses of morphine from the beginning. I hope they can do something to help , the vertoblasty sounds promising and I hope you get good news about your Velcade treatment tomorrow Please let us know how you get on Best wishes Bridget

    #104362

    brocho
    Participant

    Hi Wendy sorry I cant help with the itchy eyes Its great to hear you got a good result and are feeling well Heres to a very long remission!! Stay well love Bridget x

    #98708

    brocho
    Participant

    Hi Dai what a bugger!! It is so frustrating when you are relying on results like that and have no control over it!! I hope you can get a result next time and get on that trial. It sounds like your consultant is on the ball and I am sure she will come up with another plan if needed Love to you and Janet Bridget x

    #92050

    brocho
    Participant

    Hi Carol good to hear from you and even better to hear you are doing well . I was only on Revlimid for a short while and the fatigue was the worst side effect for me Have a good time in the sun that will recharge your batteries love Bridget x

    #85482

    brocho
    Participant

    Hi Ray welcome from me too . As Min has said there are lots of people on here who have had a transplant so you are in the right place to find answers to any queries you may have It isnt a picnic , although some get through it relatively easily but it is well worth doing! Hopefully you will sail through and have a very long remission afterwards Do you know when you will be having yours yet? I know its scary but you will lots of support on here so keep in touch Best wishes Bridget

    #85474

    brocho
    Participant

    Hi Jo welcome glad you have joined us . It sounds as if your partner is coping well and I am sure your support makes that possible. We all need an outlet though and there are so many lovely people on here to offer you support Good luck and keep posting Bridget

    #85404

    brocho
    Participant

    Hi sorry you have been feeling rotten hope it doesnt last long. Have you asked for sedation when you have your bone marrow biopsy? I would definitely advise sedation no point putting up with pain when there is a choice Good luck Bridget

    #98699

    brocho
    Participant

    Dear Gill what reason do they give for keeping Stephen on Dex? I know it helps a lot with pain relief but there are other drugs that would work too. I am now on Prednisalone which is as effective as Dex but much kinder I havent felt like tearing lumps of anyone since I have been n it . I would have a word with the specialist nurse and explain how awful Dex is for you There must be an alternative that wont rob you of precious time together . I hope you get this sorted soon Gill it seems so unfair that you have to deal with this as well Lots of love to you both Bridget x

    #107398

    brocho
    Participant

    Dear Chrissie I am so sorry David lost the fight against this wretched illness , he fought hard with you by his side Dont have regrets savour the lovely memories you have David will always be with love Bridget x

    #92028

    brocho
    Participant

    Hi Clara its good to hear from you and brilliant to hear your dad got such a good result after his treatment. Now you can all get back some normality in your lives and relax , after all the stress of last year you certainly deserve some fun.Happy new year to your dad and all your family love Bridget x

    #106919

    brocho
    Participant

    Hi Eve not sure what your question is , Gary has qa sister who has just been diagnosed with mm. love Bridget x

    #98690

    brocho
    Participant

    Hi Nicola good to hear your dad is home again and having a break from treatment Sometimes a short break is just the thing to get your strength back ready to fight the next round . I laughed out loud at your dads name for myeloma so tell him thanks from me for making my day ! Enjoy the time doing ordinary things together, the eating sounds good, especially trifle. love Bridget x

    #98668

    brocho
    Participant

    Oh Dai it really does seem unfair that your hard won remission was so short! It sounds as if your excellent doctors are really on the ball thoughwhich helps to take the sting out of it a bit though . I will cross everything for you to get the Carfilmozib on the trial Hang in there Dai your strength and wonderfully positive nature will get you through . I hope Janet is feeling a bit better today it must have been an awful shock for both of you lots of love Bridget x

    #98641

    brocho
    Participant

    Thankyou all for your replies and kind words I really dont know what I would do without all my lovely cyber friends lots of love Bridget xx

    #98646

    brocho
    Participant

    Hi Helen and welcome I am glad you felt able to post on here to get some support , there are so many lovely people on here who may be able to help. Sorry I am not aware of links between myeloma and prostrate cancer though. Your fiance has certainly been through the mill and I am sure the future must seem very bleak at the moment but hopefully he will have a very long remission after his sct best wishes to John and you Bridget

Viewing 15 posts - 121 through 135 (of 1,086 total)