buzz

buzz replied to the topic A short post. in the forum General 8 years, 1 month ago

Hi Dawn, hi all on this post!

Many thanks. And lots of luck to you too.

My lightchains are shooting up. Gone from 250 to 600 in 2 weeks so I start with Velcade and dexamethasone next Friday. Trying to stay positive but the fact everything seems to have come back only 11 months post SCT and so quickly feels very worrying.

Any positivity you…[Read more]

buzz replied to the topic It's back. Feeling lost and confused in the forum Under 50s 8 years, 2 months ago

Richard

Many thanks for the quick response.

Agree with the working and the exercise! Helped me no end so far.

Will keep you posted; hoping for an update in the next few weeks. Given the rapid rise in my light chain numbers I’m expecting to have to make a decision fairly quickly but will try to get as much info as I can beforehand.

Have a good…[Read more]

buzz replied to the topic It's back. Feeling lost and confused in the forum Under 50s 8 years, 2 months ago

Hi Rob

Many thanks for your reply. It has helped me put a bit of perspective on the return of the myeloma. I think it is now time I started to try to understand this disease a bit more and also what my specific type is.

Having followed the Myeloma XI trial and got through it relatively well and then had the SCT and again responded well I gave…[Read more]

buzz replied to the topic A short post. in the forum General 8 years, 2 months ago

Hi Jan

Just read through some of your earlier replies and looks like you have already answered most of my questions!

However happy to hear from you again if you get a chance.

Buzz

buzz replied to the topic A short post. in the forum General 8 years, 2 months ago

Hi Jan

Many thanks for your reply. It has helped me put a bit of perspective on the return of the myeloma. I think it is now time I started to try to understand this disease a bit more and also what my specific type is.

Having followed the Myeloma XI trial and got through it relatively well and then had the SCT and again responded well I gave…[Read more]

buzz replied to the topic A short post. in the forum General 8 years, 2 months ago

Hi Jan

Many thanks for your reply. It has helped me put a bit of perspective on the return of the myeloma. I think it is now time I started to try to understand this disease a bit more and also what my specific type is.

Having followed the Myeloma XI trial and got through it relatively well and then had the SCT and again responded well I gave…[Read more]

buzz started the topic It's back. Feeling lost and confused in the forum Under 50s 8 years, 2 months ago

This is my first ever post on the forum. I was diagnosed in Aug 2014 and due to my youngish age (now 48) I opted to go on the Myeloma XI trial. I had CCRD for 4 cycles responding very well with levels of over 2000 dropping to virtually zero after 2 cycles then to nothing.
I had my stem cells harvested and had an auto SCT in February 2015, was also…[Read more]

buzz started the topic It's back. Feeling lost and confused in the forum Under 50s 8 years, 2 months ago

<div class=”bbp-reply-author” style=”box-sizing: border-box; margin: 0px; padding: 0px; font-size: 13px; direction: ltr; float: left; text-align: center; width: 115px; font-family: Arial, Oswald, ‘Helvetica Neue’, Helvetica, Helvetica, Arial, sans-serif; -webkit-text-size-adjust: auto; background-color:…[Read more]

buzz replied to the topic A short post. in the forum General 8 years, 2 months ago

Hi All

This is my first ever post on the forum. I was diagnosed in Aug 2014 and due to my youngish age (now 48) I opted to go on the Myeloma XI trial. I had CCRD for 4 cycles responding very well with levels of over 2000 dropping to virtually zero after 2 cycles then to nothing.

I had my stem cells harvested and had an auto SCT in February 2015,…[Read more]

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