[cartdawParticipant]

That’s good news mike. I’m hopefully going to have the SCT early sept at sheffield if all goes to plan. Para proteins now 4 after 4 cycles but not taking anything for granted hope they stay down. Hating the days when I’m on the dex. But otherwise coping reasonably ok.  Have already been in hospital with a chest infection.  Good luck with your journey. Sounds like you are doing well.  Dawn

[cartdawParticipant]

Hope you soon on the mend Ian . My SCT  pencilled in for early sept all being well. Not looking forward to it. Two more cycles of CDT making it 6 then harvest early August.

[cartdawParticipant]

The info days sound informative peter I really must get myself booked onto one of these.  Dawn

[cartdawParticipant]

Hya Andrea Ian and Peter  Iv just completed my 4th cycle of the CDT . My para proteins are down to 4 . Have had an appt at sheffield hallamhire to discuss stem cell transplant. The harvest is pencilled in for around early August and the transplant around early sept. All being well. Not looking forward to it as you can imagine but now on this roller coaster of treatment.  If it puts me in remission for a few years I will try anything.  Hope you are all doing ok.

[cartdawParticipant]

hi Helen, jan and andy have been reading your posts it all sounds very daunting. I have just started cdt treatment into my second cycle. my paraproteins have gone down to 8 from 29 already but I am not taking anything for granted as they will probably go up and down over the next few months.  I have been diagnosed for a year now.  first smouldering and now active in april this year.  my light chains had dramatically increased so treatment was recommended.  I am on the myloma x1 trial  CDT regime .  coping but hating the dex.  good luck to all of you.  dawn x

[cartdawParticipant]

hi andrea,  ian and peter.  hope you are all well and coping I have just completed my 2nd cycle of cdt and my paraproteins have gone down from 29 to 8 already.  hope they stay down fingers x.  but im not taking anything for granted.  havnt got the light chain results back yet so im hoping they have gone down as well.  I can cope with the thalidomide and the chemo but the dex on 3rd and 4th day makes me feel unwell but can cope with it.  Iam IgG too but im not sure if iv had a cytogenetic test  it hasn’t been mentioned.  I will mention it at my appt tomorrow.    look after yourselves   dawn xxx

[cartdawParticipant]

hi mike how are you doing have you started your treatment yet.  I am just completing my second cycle and my paraproteins have gone down from 29 to 8 already.  fingers x they stay down . havnt got the latest light chain results but they had fallen before I started treatment from 7000 to 5000.  good luck.

[cartdawParticipant]

hi peter glad things are improving for you, feeling fine except I feel really shaky and dizzy mainly until lunchtime not sure if its the thalidomide which I take at night or the days off when I don’t have the dex.  Its just my first week so im not sure what to expect.

[cartdawParticipant]

Hi Ian and Andrea hope you are both doing ok have been watching your posts as I have just started treatment as have gone from asymptomatic myeloma to active myloma my paraprotein in 26 and my free light chains have jumped to 7,000 which is high risk for kidney damage.  everything else is stable.  I have just gone into the myeloma x1 trial and randomised to CDT . have just started my first cycle no side effects yet am wondering if this is the calm before the storm.

[cartdawParticipant]

It’s good to hear positive comments . I’m just about to embark on my first treatment after being. Asymptomatic for a year. Stem cell transplant in about 6 mths if all goes well with the initial treatment. Good luck guys  dawn x

[cartdawParticipant]

Hi thanks Mervyn I start treatment next week . Although everything relatively stable light chains are up to 7,000.

[cartdawParticipant]

Hi mike good luck I don’t think il be far behind u x

[cartdawParticipant]

My name is dawn Cartlidge  god knows y I put my username as cart daw lol

[cartdawParticipant]

Hi Andrea hope all goes well for u. I may be going down the same route so please let me know how u get on. My para proteins are up to 24 so bloods to be rptd in 1 month.  If light chains r high May start treatment due to new guidelines although I’m well with no bone damage

[cartdawParticipant]

Hi Michael I wish u well. Iv been to see cons today and para proteins have gone up to 24 . So all bloods have to be rptd in 3 weeks. If anything else raised then ie light chains may have to start treatment also   due to new guidelines. Otherwise I’m well . MRI ok

[Author]

Posts