Hi Rhiannon,

you sound like a fantastic young man,strong of character, and a real credit to your dad. I have a hunch that your dad thinks that by not talking to you, he is protecting you.

I am 64 and have had MM since December 2012. My children are 40 and 43 years old, and I have grandchildren of your age.I went through the motions of trying to…[Read more]

Hi Tom,
I am 11 months post sct,and my pains returned several weeks, ago and I feel very tired. I have had x-rays, and blood tests, which have found nothing untoward.Consultant’s advice is to get more rest, as it is still early days post sct. My son-in-law is an oncologist, and he told me that aches and pains are nothing unusual, and that I’m…[Read more]

Done.

Hi Liz,

Well done on raising £230, gosh no pressure then !! I have the forum pack and have picked up on some of the tips. I think that mine will be a much smaller gathering though. I think that maybe if I hold it on a weekend, more people will be free to come along.
Thanks for the advise.
Love Lesley x

Hi Carol,

Good Luck on Wednesday, take a hat as you will really feel the cold when your hair has gone.Is someone going with you ?

Just keep reminding yourself that hair loss is a small price to pay. My nan had a great saying “all times pass ” and it has been my mantra over these last unpleasant few months.
My teenage grand daughters tell me I…[Read more]

Hi Carol,
Hi Carol,
when I had my pre SCT chemo,in August, my hair began to come out within a few days. I was frightened to comb it even . However,it became such a nuisance ( hair in everything – washing up bowl, sandwiches, gravy !!) that I got my daughter, a hairdresser, to shave it all off. We both cried silent tears while it was being done.Oh,…[Read more]

Hi Pat,
thanks so much for replying.

I have decided to 'bite the bullet' and have taken your advise .I went out on Friday,and on your advise bought Olia AND I have chosen a more daring colour than I would normally choose. I am yet to apply it, as I have had a couple of not feeling so good days, am feeling a bit brighter today so….tomorrow…[Read more]

Ah Tom, I knew you would have to have a sneaky peek when you read the headliner !

Like you, I don't want to put a name to the condition when I finally tell my grand daughters, and 'dodgy bones' is a good one. I have the problem though that the girls live with me, and therefore witness my bad days however hard I try to mask it. Still, enough to…[Read more]

Hi Helen,

thank you for taking the time to reply.

I think that I might do as you did and use a colour that doesn't contain bleach. After all, what's the worst that that can happen – my hair might fall out a bit sooner that expected that's all!

I agree about the morale factor, I am feeling so dowdy at the moment.So, in a few days time,…[Read more]

Hi Jan,
Thank you so much for replying.

Gosh you've have had a time of it haven't you .

I must say I am very tempted to put a colour on, I feel so dowdy.Also,I have always had poker straight hair and would be so pleased if, after SCT my hair grew back with a bit of curl !Every woman understands the confidence boost of a 'good hair day' -…[Read more]

Hi Jane,

I'm Lesley, and I became a member of the 'club' at Christmas. I am so sorry that you have had to join, but I think you will find it invaluable as I have, for advise .

I have already had so much support shown to me, and no question goes unanswered. They are a wonderful bunch, it's such a shame that we all had to 'meet' under such…[Read more]

Hi Tim,

thanks for getting in touch. The candidates for myeloma XI are chosen randomly by computer, after you have agreed to take part. So if the 'computer says NO'…..now which comedy sketch is that phrase from !?

It's so good to know that you are well, so encouraging for us newcomers to this horrible illness.

Are you actually…[Read more]

Hello Mavis,
thank you for your kind words and encouragement.I don't know your present health circumstances, but I hope things are going well for you.
Kind regards,
Lesley x

Hello Vicki and Colin,

thank you so much for your input and advise, and for 'telling me as it is'.I started today, and felt quite 'befuddled' sorting my pills out. I've made my own list of when and best times to take each set of tablets, this afternoon, so hopefully, there will be no slip-ups !

Everyone on this site has been so helpful and…[Read more]

Hi Graham,

thank you so much for getting in touch. I have started RCD today, and your story has given me some much needed mental strength.Getting through all those tablets on day 1 takes up some time though! The consultant thinks I will need 4-6 cycles.

I had a peep at your profile, oh dear you were so young to have this horrible 'thing'.…[Read more]

Hi Helen,

Oh how I echo your sentiments! I signed the papers on Monday and spent the rest of the day mourning my 'normal life'I started treatment today -revlimid,but didn't sleep last night worrying about the horrible chemicals I was about to put into my body.I don't usually go in for self pity,I am a no nonsense sort of person…[Read more]

HI Tebebe,

I was diagnosed with MM on Christmas Eve, so am going through the
same emotions as you at the moment. I'm sorry but I don't know anything about your condition, but I do know that people on this site have been so supportive, helpful and extremely kind. So stick with us !

I live in Four Oaks ,Birmingham.Be happy to chat anytime…[Read more]

Morning Helen,

Thankyou for the information and for sharing your experience with me. I'm glad to hear that you are doing so well, long may it continue.Your story gives me some much needed courage.I think that I am only just coming to terms with the reality of it all, and the irony of it is that I feel so well – next week will change all that…[Read more]