[charisma4Participant]

Hi Anthony,

I had the hand tremors too, but is does pass, so don't worry.
Best wishes , Lesleyxx

[charisma4Participant]

Hi Posie,

Welcome to our very exclusive club.I have found it a great support since I was diagnosed on Christmas Eve 2012.Even though this is a 'club' that we would rather not join,you will find that the people that you 'meet' here are supportive and caring.

all the best to you and David.
Lesley x

[charisma4Participant]

Hello young Tom, I have been following your progress as I am only a couple of weeks behind you with treatment.I am so sorry that this has happened to you,you are really bring tested aren't you. Don't worry about the policy of no swearing, cus we are all doing that on your behalf. Life's rubbish sometimes , but my nan had a great saying – 'all times pass'. So hang on in there.You have a great many people thinking of you and wishing you well.

Keep fighting,
Lesley x

[charisma4Participant]

Fantastic news Tom,this kind of news cheers us all up….and how apt your `onward and upwards` is right now.
Best wishes,Lesley

[charisma4Participant]

Hi Pat,
thanks so much for replying.

I have decided to 'bite the bullet' and have taken your advise .I went out on Friday,and on your advise bought Olia AND I have chosen a more daring colour than I would normally choose. I am yet to apply it, as I have had a couple of not feeling so good days, am feeling a bit brighter today so….tomorrow may well be the new look me day he-he!As you say, it couldn't get much worse,(fingers and toes crossed) so what the heck.

Once again ,many thanks'
Love Lesley xx

[charisma4Participant]

Ah Tom, I knew you would have to have a sneaky peek when you read the headliner !

Like you, I don't want to put a name to the condition when I finally tell my grand daughters, and 'dodgy bones' is a good one. I have the problem though that the girls live with me, and therefore witness my bad days however hard I try to mask it. Still, enough to worry about, so I'll cross that particular bridge when I come to it. Let's solve this hair problem first. (while I've still got some that is)!
All the best,
Lesley x

[charisma4Participant]

Hi Helen,

thank you for taking the time to reply.

I think that I might do as you did and use a colour that doesn't contain bleach. After all, what's the worst that that can happen – my hair might fall out a bit sooner that expected that's all!

I agree about the morale factor, I am feeling so dowdy at the moment.So, in a few days time, when I'm back on the dex and have more energy, I think I will risk it. I'll let you know how it goes.

Love, Lesley

[charisma4Participant]

Hi Jan,
Thank you so much for replying.

Gosh you've have had a time of it haven't you .

I must say I am very tempted to put a colour on, I feel so dowdy.Also,I have always had poker straight hair and would be so pleased if, after SCT my hair grew back with a bit of curl !Every woman understands the confidence boost of a 'good hair day' – but from what you are telling me, it's going to be quite some time before I have that feeling again!

I think I will be having SCT round about the end of May,so I suppose I ought to looking at wigs soon.

I am having an 'everything is too much effort' day today, always the same when I come off the dex. However, if I manage nothing else today , I MUST wash my hair.

Thankyou for telling me your hair story and for the advise.

Wishing you all the best,
Lesley

[charisma4Participant]

Hi Jane,

I'm Lesley, and I became a member of the 'club' at Christmas. I am so sorry that you have had to join, but I think you will find it invaluable as I have, for advise .

I have already had so much support shown to me, and no question goes unanswered. They are a wonderful bunch, it's such a shame that we all had to 'meet' under such circumstances – but on the positive side, how lovely it is to make new friends who all have one common interest!

I am on my second cycle of the trial drug. I will need between 4-6 before stem cell.I have been told that it is a long journey, and it is important to stay positive. Also,I know it is very difficult to do as a wife and a mum, but you must put yourself first for a while.

I have two adult daughters like yourself,who are a wonderful support, as I'm sure are your girls.We share a wicked sense of humour which I know is helping us get through this.

My very best wishes to you, keep us updated.
'speak' soon.
Love Lesley x

.

[charisma4Participant]

Hi Tim,

thanks for getting in touch. The candidates for myeloma XI are chosen randomly by computer, after you have agreed to take part. So if the 'computer says NO'…..now which comedy sketch is that phrase from !?

It's so good to know that you are well, so encouraging for us newcomers to this horrible illness.

Are you actually CLIMBING Ben Nevis, or just taking photo's from the bottom !! Either way, have a great time.

I will do my very best to follow your advise to stay optimistic and strong

Kind regards,
Lesley

[charisma4Participant]

Hello Mavis,
thank you for your kind words and encouragement.I don't know your present health circumstances, but I hope things are going well for you.
Kind regards,
Lesley x

[charisma4Participant]

Hello Vicki and Colin,

thank you so much for your input and advise, and for 'telling me as it is'.I started today, and felt quite 'befuddled' sorting my pills out. I've made my own list of when and best times to take each set of tablets, this afternoon, so hopefully, there will be no slip-ups !

Everyone on this site has been so helpful and kind, I appreciate it so much.

Kind regards,
Lesley

[charisma4Participant]

Hi Graham,

thank you so much for getting in touch. I have started RCD today, and your story has given me some much needed mental strength.Getting through all those tablets on day 1 takes up some time though! The consultant thinks I will need 4-6 cycles.

I had a peep at your profile, oh dear you were so young to have this horrible 'thing'. But I am so pleased that you are doing so well, long may it continue !

kind regards,
Lesley

[charisma4Participant]

Hi Helen,

Oh how I echo your sentiments! I signed the papers on Monday and spent the rest of the day mourning my 'normal life'I started treatment today -revlimid,but didn't sleep last night worrying about the horrible chemicals I was about to put into my body.I don't usually go in for self pity,I am a no nonsense sort of person generally.

So here I am on day one of treatment and the rest of my life,and like you feeling very angry,which maybe is a good thing, as it makes me determined to fight.I hope I don't begin to feel too ill, as I have a daughter who is bipolar and two grandchildren living with me, and the children are now teenagers who don't miss a trick.I really want to keep this from them as long as possible, as they have already witnessed illness first hand with their mum.

Thank you for your information, and thank you for 'lending an ear'

I am already finding this site so helpful, and full of such kind people.

To borrow Tom's phrase…..onwards and upwards !

My best wishes,
Lesleyx

[charisma4Participant]

HI Tebebe,

I was diagnosed with MM on Christmas Eve, so am going through the
same emotions as you at the moment. I'm sorry but I don't know anything about your condition, but I do know that people on this site have been so supportive, helpful and extremely kind. So stick with us !

I live in Four Oaks ,Birmingham.Be happy to chat anytime you need to talk to someone outside of the family.
Kind regards,
Lesley.

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