chevgr

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Viewing 8 posts - 1 through 8 (of 8 total)
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  • #133129

    chevgr
    Participant

    Thanks for your reply. What other drugs were revlamid used with jellytot?

    I didn’t have revlamid in the end. The suggestion was VRD but the insurance company said revlamid isnr authorised yet for frontline treatment.  So I’m on VCD .  Just completed one cycle now on the second.  No change in paraprotein levels but it’s early.

     

     

     

    #132330

    chevgr
    Participant

    thanks alex

    #132262

    chevgr
    Participant

    Thanks

    #132254

    chevgr
    Participant

    Great to hear.

    On the question of exercise. Do you do all the usual gym training now?

    Can one exercise during treatment as long as one feels well? The dr told me not to use weights. I guess because of potential bone issues? What about other forms of gym work anyone have experience?

    Thanks

    #132252

    chevgr
    Participant

    Thanks for the reply. Good news you managed to get away

    #132105

    chevgr
    Participant

    Oh that’s annoying the last message came out as HTML!

    I’ll repost:

    “thanks for the reply. My paraproteins are 49 so I guess that means I’ll start treatment soon? Is that high or does it mean it’s advanced?

    How long does each cycle last and can you work in between or are you off work for a while?

    Good news yours have come down so much

    #132104

    chevgr
    Participant

    <p style=”text-align: left;”>Hi Rob</p>
    <p style=”text-align: left;”>thanks for the reply. My paraproteins are 49 so I guess that means I’ll start treatment soon? Is that high or does it mean it’s advanced?</p>
    <p style=”text-align: left;”>How long does each cycle last and can you work in between or are you off work for a while?</p>
    <p style=”text-align: left;”>Good news yours have come down so much</p>
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    <p style=”text-align: left;”></p>
    <p style=”text-align: left;”></p>
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    #132092

    chevgr
    Participant

    Hello all

    I read this with interest. I’m newly diagnosed, 47, male. Inspired by the stories of good response to treatment.

    I have no idea what my treatment plan will be yet.

     

Viewing 8 posts - 1 through 8 (of 8 total)