chrismac67

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  • #127099

    chrismac67
    Participant

    Wow I could have written this post myself.  I had my SCT Oct 2015 and am having weekly blood tests as Paraproteins still traceable. So far they remain stable but each month when I go to clinic for zometa and pentamidine, I dread the appointment with consultant in case I’m told the Paraproteins are rising, despite being on maintenance treatment.  Like you I’ve been very positive over the past year since diagnosis but this stage is a whole new phase and in many ways more difficult to cope with. I’m sorry not to be able to offer much advice since I seem to be going through the same issues as you. Perhaps counselling is the way forward. xxx

    #124244

    chrismac67
    Participant

    Hi everyone. I was diagnosed in February this year following a surgical procedure after which I had kidney problems. PPs down to 14 from 87 and I’m due to start SCT 28th September.  I’m not looking forward to it, most anxious I’ve felt about anything since diagnosis. It is reassuring to read other people’s experiences. I am a 48 year old mother of 3 children, the youngest of which is only 4, so I feel that, despite my fears, I must go ahead with this to have the best chance of being around as long as possible for my children and husband. Having r2ad this forum I can go in informed and knowing that I will feel pretty rubbish for a while. Good Luck everyone going through this and here’s hoping for a positive outcome. Xxx

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