clarebird

  • clare replied to the topic to SCT or Not to SCT in the forum General 9 years ago

    Thank you ComfortablyNumb, great song by the way..lol.. I'm happy you've had a,great result, thank you for sharing your experience with me and mum. It really helps her when it comes to making the next decisions regarding her treatment x

  • clare replied to the topic to SCT or Not to SCT in the forum General 9 years ago

    A Massive thank you to all your replies.. just being able to hear other peoples experiences is wonderfully comforting..:) Dai. You make an interesting point, and I have looked at some American myeloma sites. However, I'm not sure yet what alternative treatments we have here in the UK. I will absolutely get as much info as possible, to help mum…[Read more]

  • clare replied to the topic to SCT or Not to SCT in the forum General 9 years, 1 month ago

    Thank you…I will definitely start looking for that expert!..x all your advices have been very helpful.. I will show mum all you have said.. and I know she will feel a whole lot better about it all..I guess the first step is having a consultation at Barts, and seeing where that takes us. Interesting Tracy, I didn't know you could store cells for…[Read more]

  • clare started the topic to SCT or Not to SCT. in the forum General 9 years, 1 month ago

    Hello Everyone, I'm Clare, and my 67 years young mum was diagnosed with myeloma in October 2012. She has just completed 6 cycles of CTD, and responded well, with her pp levels dropping steadily from 33.5 to 5. Her consultant has offered her a referral to Barts for SCT, but this treatment sounds terrifying, and we are all a little scared! does…[Read more]

  • clare replied to the topic New in the forum Newcomers 9 years, 1 month ago

    Hello Ann and Pete. My name is Clare, and my mum was diagnosed with myeloma in October 2012. She has just finished 6 cycles of CTD, and has been offered a referral for SCT at Barts. Does anybody have any experience of Barts?and is this treatment as terrifying as it sounds? we are all a bit scared..she has responded well to the CTD, with her pp…[Read more]