[clearwellParticipant]

Hello Bridget,I can't add anything else to what everybody has said but my heart goes out to you and I just want you to know that I am thinking about you.As you know my journey with this is just beginning so I am interested in all comments.I have had my op and see the Doc next week to find out when the treatment is going to start.
You stay strong honey.Much love Geri xx

[clearwellParticipant]

Hi Carol,thank you so much for your best wishes.I have gone through all the looking on the internet purely because I didn't know anything about myeloma but as I said you cant beat speaking to people who are actually going through the same thing.
The hardest thing for me was telling my mum who is 82.A very fit and active lady and she has seen me in severe pain etc etc.I am very positive about it all now because I know what I'm dealing with.I let everybody else do the doom and gloom bit.I don't doubt there are going to be times in the future when I will be whinging to you all though.
Stay feeling well and I look forward to speaking to you soon.
With love,Geri xx

[clearwellParticipant]

Hello Tom,you found me on f/b and I will be gentle!!Either my keyboard has shrunk or my eyes are getting worse.
I am so glad that things are on the up for you that makes me feel so much better.All the books and leaflets the hospital give you to read is to much to take in,there is nothing like actually talking to people who are going through the same thing.In fact I have now shoved them all in the back of the wardrobe.It will all become clear as we go along.
My op is still scheduled for the 5th March and I go for the 2nd half of the pre op next week.Then it's countdown.Apart from not being able to walk without nasty pain I feel the best I've felt in months.
In your words,onwards and upwards lol.
love Geri xx

[clearwellParticipant]

Hi Jo,
Thank you for the welcome.It is nice to have somewhere to go where you can chat to people who know what your going through.
I found I was getting cross with people who were getting upset when I told them but thinking about it I would probably have done the same if roles had been reversed.
I am and will always be a very positive person and whatever comes my way I will fight it all the way and I want everyone to fight with me.
My friend said to me the other day how brave I am…..I'm scared stiff of the unknown but I will still fight.
Thanks for listening and I look forward to talking to you.
Love Geri xx

[clearwellParticipant]

Hi Tom,Well you did make me laugh with your quip about Tesco's.My poor husband whose name is Eric didn't know what to do or say cause I hadn't shown any emotion at all up until then.
It's difficult with the friends and family who burst into tears at the drop of a hat.I am still feeling very positive about it all even though I know there isn't a cure for this.I'm glad I found this web site.Yes I am on face book geriwebb and there is a picture of my little black and white dog with a red coat on look me up eh?
Can I ask what your reasons are for being on here if thats being to nosey tell me to mind my own buisness and I wont get offended.
I look forward to chatting to you love Geri xx

[clearwellParticipant]

Hi Tom and Bridget,I'm sure there will be lots of questions at some point and also lots of rants too.
I have been having regular blood tests for the mgus every 4 months and the paraprotein level stayed at 5 for about seven years and At Easter last year I started to get awful pains in my hip lower back down to my knees to the extent I couldn't walk any distance which got worse and worse.My blood Dr was on it straight away with numerous tests and I knew before Christmas but had to have a bone marrow to see how bad it was.Everything has happened quite quickly.
I am at Lincoln Hospital now and I can ask Dr Kandee anything and he explains it all and makes sure I understand.He draws me lots of pictures.
I was shocked that they found it in my head and imagined all sorts of things and they were not all good either.I got very upset in the middle of Tesco's cause it suddenly hit me I would lose my hair.The silly things we worry about eh.
I will be having the stem cell at Nottingham City Hospital which is about an hour and a bit away from here and I understand I will be in isolation for 4 weeks.I'm not going to like being away from my family and my dog for that amount of time but if it's got to be done..As long as I can take my lappy.
I probably will be bending your ears especially when it gets overwhelming which I'm sure it will at times.Thank you,Geri.

[clearwellParticipant]

Hi Tina,do you know what treatment you will be having yet or haven't you got to that stage.
My Doctors are all talking to one another and I go for my pre op next week for the bowel op so I may hear something then.Are your Doctors good? How did they find you had it?This is all new to me so I'm interested.
I wish you luck to and really hope all goes well for you.

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