cygnet replied to the topic breast lump in the forum Newcomers 9 years, 9 months ago
Hi – so pleased to hear this 🙂
I was wondering about sending you a private message but didn’t want to intrude. This condition seems to heighten everything which in turn adds to the stress doesn’t it?
I recently had pneumonia which I wasn’t overly worried  as I have an excellent gp . But then the worry started – was something other than my…[Read more]
cygnet replied to the topic breast lump in the forum Newcomers 9 years, 10 months ago
Hi Chrissie
So sorry to hear this but I’m glad it’s all being checked out.
I’ve got everything – not just my fingers – crossed for you.
Sending love & hugs,
C xx
cygnet replied to the topic Pom cycle 18 in the forum Treatment 9 years, 10 months ago
Hi Andy,
Just wanted to say I find your posts inspirational!! Thank you for being such a positive person & for bolstering so many of us along the way.
I’ve got everything crossed for your blood tests when you get back…
Love & hugs,
C xx
cygnet replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS 9 years, 10 months ago
Happy holidays – chill & enjoy!
Love & hugs,
C xx
cygnet replied to the topic Heading for treatment in the forum Smouldering myeloma / MGUS 9 years, 10 months ago
Hi  – as with so many myeloma related issues, it seems to be very individual as & when you cross the boundary from MGUS to Smouldering & then onto treatment. The more I read & research, the more I find ” grey” areas in terms of this.
I have moved from from MGUS to Smouldering although at my hospital they don’t use Smouldering generally as a…[Read more]
cygnet replied to the topic SCT in the forum Treatment 9 years, 10 months ago
Hi
Thinking of you & hoping all goes well
Best wishes,
C x
cygnet replied to the topic Birthday Lunch for Stephen in the forum Off topic 9 years, 11 months ago
Hi Gill
Thank you for sharing your day of celebration with us. I believe when people pass away their legacy is what they leave behind – memories are  an important element of this. You chose to make more memories that Stephen is part of for his special birthday & that is a brave and amazing thing to do.
I’m glad you made the most of the day -…[Read more]
cygnet replied to the topic Did I have the quickest hospital visit? in the forum Smouldering myeloma / MGUS 9 years, 11 months ago
Hurrah! Well done you!
Love & hugs,
C xx
cygnet replied to the topic Husband recently diognosed in the forum Newcomers 9 years, 11 months ago
Hi Jan
Sorry for slow reply – not been around on the forum for a while. I have the tingling you describe – in fact the neurologist I was referred to investigated it & that  was what led me to  haematology for myeloma tests. etc, etc. There’s info on this wonderful website so check out Peripheral neuropathy.
There are treatments for it which c…[Read more]
cygnet replied to the topic Need to let off steam before my appointment in the forum Smouldering myeloma / MGUS 10 years ago
This is so awful for you  – not to get the answer you wanted ( current pp) after waiting & worrying.
I hope you can do something nice -for yourself- tomorrow ( Thursday) Â because you deserve it.
I know it’s not much consolation but it is good news that your Hb & platelets are good – long may that last….
Love & hugs,
C xx
cygnet replied to the topic Need to let off steam before my appointment in the forum Smouldering myeloma / MGUS 10 years ago
So so sorry to hear this.
Have you got an appt for the paraprotein to be done – you can always ask your Gp for this.
Have another chocolate muffin for me…
Love & hugs,
C x
cygnet replied to the topic Need to let off steam before my appointment in the forum Smouldering myeloma / MGUS 10 years ago
Oh bless you – why do they do this!!! You have every right to rant……
They tried to postpone my appointment like this ( for first results from bmb etc. Answers to the big “have I got cancer question). Actually they left a message  on my answerphone  on Monday afternoon saying “Do not come  to clinic this Wednesday – we have rebooked you for ne…[Read more]
cygnet replied to the topic Confused and worried. in the forum Newcomers 10 years ago
Hi Helen,
Hope all goes well with your appointment.
C xx
cygnet replied to the topic Confused and worried. in the forum Newcomers 10 years ago
Hi – I’m sorry you’re having a stressful time.
I agree with Richard though, do ring the Myeloma nurses on the Infoline – I have done several times & have found them wonderfully helpful & reassuring. I also think you should ring your nurse specialist because she can help you interpret your results &  refer to your  consultant if clarification is n…[Read more]
cygnet replied to the topic Some advice needed!! in the forum Newcomers 10 years, 1 month ago
Hi Janey
I can’t help with this personally but have you thought of ringing the Infoline? I’m sure the nurses will be able to help you.
Good luck
C xx
cygnet replied to the topic Playing the waiting game in the forum Smouldering myeloma / MGUS 10 years, 1 month ago
Hi Chrissie
So glad you’re feeling calmer & talking to Ellen helped. Nothing wrong with a good cry if it lets out the pain & makes you feel better. It’s tough living in this parallel universe as we try to stay strong for those around us. Don’t give yourself a hard time hun.
I’m adding my love & hugs to those above!
C xx
cygnet replied to the topic mgus/borderline myeloma in the forum Smouldering myeloma / MGUS 10 years, 1 month ago
Hi Yvonnese
Sorry to hear you’re having a difficult time. I am in a similar position to you in terms of being classed as mgus/borderline myeloma – and yes, I hurt alot of the time!! Bone ache/muscle pain….. it sounds horribly familiar! – & I am an active person who does Pilates  5x per week. When I spoke to Ellen ( one of the Infoline Nurse…[Read more]
cygnet replied to the topic Allo graft (Allogeneic) stem cell transplant in the forum Treatment 10 years, 1 month ago
Hi Noel,
Thinking of you & hoping all goes well 🙂
C x
cygnet replied to the topic Paraproteins at a new low! in the forum Treatment 10 years, 1 month ago
Andy – so pleased to hear this news! I have read many of your posts & appreciate your input into this website.
I have everything crossed for you for your appt!
C xx
cygnet replied to the topic Waiting and worrying about diagnosis in the forum Newcomers 10 years, 2 months ago
Hi Rosie,
Just wanted to add my best wishes to Keith’s!
I hope all goes well tomorrow 🙂
C x