Hi – so pleased to hear this 🙂

I was wondering about sending you a private message but didn’t want to intrude. This condition seems to heighten everything which in turn adds to the stress doesn’t it?

I recently had pneumonia which I wasn’t overly worried  as I have an excellent gp . But then the worry started – was something other than my…[Read more]

Hi Chrissie

So sorry to hear this but I’m glad it’s all being checked out.

I’ve got everything – not just my fingers – crossed for you.

Sending love & hugs,

C xx

Hi Andy,

Just wanted to say I find your posts inspirational!! Thank you for being such a positive person & for bolstering so many of us along the way.

I’ve got everything crossed for your blood tests when you get back…

Love & hugs,

C xx

Happy holidays – chill & enjoy!

Love & hugs,

C xx

Hi  – as with so many myeloma related issues, it seems to be very individual as & when you cross the boundary from MGUS to Smouldering & then onto treatment. The more I read & research, the more I find ” grey” areas in terms of this.

I have moved from from MGUS to Smouldering although at my hospital they don’t use Smouldering generally as a…[Read more]

Hi

Thinking of you & hoping all goes well

Best wishes,

C x

Hi Gill

Thank you for sharing your day of celebration with us. I believe when people pass away their legacy is what they leave behind – memories are  an important element of this. You chose to make more memories that Stephen is part of for his special birthday & that is a brave and amazing thing to do.

I’m glad you made the most of the day -…[Read more]

Hurrah! Well done you!

Love & hugs,

C xx

Hi Jan

Sorry for slow reply – not been around on the forum for a while. I have the tingling you describe – in fact the neurologist I was referred to investigated it & that  was what led me to  haematology for myeloma tests. etc, etc. There’s info on this wonderful website so check out Peripheral neuropathy.

There are treatments for it which c…[Read more]

This is so awful for you  – not to get the answer you wanted ( current pp) after waiting & worrying.

I hope you can do something nice -for yourself- tomorrow ( Thursday)  because you deserve it.

I know it’s not much consolation but it is good news that your Hb & platelets are good – long may that last….

Love & hugs,

C xx

So so sorry to hear this.

Have you got an appt for the paraprotein to be done – you can always ask your Gp for this.

Have another chocolate muffin for me…

Love & hugs,

C x

Oh bless you – why do they do this!!! You have every right to rant……

They tried to postpone my appointment like this ( for first results from bmb etc. Answers to the big “have I got cancer question). Actually they left a message  on my answerphone  on Monday afternoon saying “Do not come  to clinic this Wednesday – we have rebooked you for ne…[Read more]

Hi Helen,

Hope all goes well with your appointment.

C xx

Hi – I’m sorry you’re having a stressful time.

I agree with Richard though, do ring the Myeloma nurses on the Infoline – I have done several times & have found them wonderfully helpful & reassuring. I also think you should ring your nurse specialist because she can help you interpret your results &  refer to your  consultant if clarification is n…[Read more]

Hi Janey

I can’t help with this personally but have you thought of ringing the Infoline? I’m sure the nurses will be able to help you.

Good luck

C xx

Hi Chrissie

So glad you’re feeling calmer & talking to Ellen helped. Nothing wrong with a good cry if it lets out the pain & makes you feel better. It’s tough living in this parallel universe as we try to stay strong for those around us. Don’t give yourself a hard time hun.

I’m adding my love & hugs to those above!

C xx

Hi Yvonnese

Sorry to hear you’re having a difficult time. I am in a similar position to you in terms of being classed as mgus/borderline myeloma – and yes, I hurt alot of the time!! Bone ache/muscle pain….. it sounds horribly familiar! – & I am an active person who does Pilates  5x per week. When I spoke to Ellen ( one of the Infoline Nurse…[Read more]

Hi Noel,

Thinking of you & hoping all goes well 🙂

C x

Andy – so pleased to hear this news! I have read many of your posts & appreciate your input into this website.

I have everything crossed for you for your appt!

C xx

Hi Rosie,

Just wanted to add my best wishes to Keith’s!

I hope all goes well tomorrow 🙂

C x