Hi Jeff.
I can’t tell you wether partial remission is as good as it’ll get for you. I think 6 cycles is the norm for CDT and I think they’ll be trying Velcade to push your paraproteins down a bit further before going onto SCT. Velcade works well and quickly in most people and I’m sure it’ll get you to SCT if that’s the route you want.
I had…[Read more]

Hi Maureen.
I’m glad to hear Ian is out of hospital at last. I hope his wound heals quickly and you can both start enjoying a “normal” life the best you can.

Every day is a gift.
Unwrap it gratefully

Andy xx

Hiya Pauline and Mark, along with other forum followers, I would like to add my welcome to you. Not a place any of us want to be, but here we are, you will get a lot of support from here, lots of experience and knowledge.
For my part I was diagnosed in march 2012, I was lucky it was a very quick diagnosis, thanks to my persistent GP, I had no…[Read more]

Dear Dave & Gill. I am sure that you have made the right decision. I hope it all goes ahead inthe next couple of weeks.
Remember if you have any fears about the transplant process or any worries about the after effects, just ask the forum.
Good luck.
Regards
Tony F

Hi Mandy, hang on in there, sounds as though you have the right attitude to get through it all, regardless.
I know where you are at, was there earlier in the year and am ok now, even the hair has come back. Any hardships are only short lived, just think when you get home the weather may possibly be summer, sunny and warm, and you can recoup in…[Read more]

Hello Gill and Dave. I am 68, was diagnosed end March 2012. Had lenalidomide, cyclophosphamide, dex and ranitidine for five months, no further drugs until December when there was an aborted attempt to harvest stem cells ( got an infection ) harvest restarted mid January with the transplant beginning February.
Like you Dave during those months…[Read more]

Hello Buzzin Helen, you really are Buzzin!
Let me tell you a little tale about open plan clinics, back in January prior to my stem cell harvest I was in the day clinic for my monthly penidronate infusion. ( i chat to everyone, so would probably get on your nerves! ) Some weeks later, after the stem cell transplant, I was recouping at home, the…[Read more]

Hi Dai and Chris
Dai is right I've been through most the standard and some not so standard treatments to no avail. My PP's stubbornly remained in the mid 30's. The criteria I was given at the start of treatment, when my PP's were 50, to get to SCT was at least a 50% reduction in PP levels. So that would of put me in the lower 20's bracket. Anyway…[Read more]

Wonderful, how right you are about the appreciation of the smaller things in life.
Glad that you were able to do it, doesn't it make you feel good!
Regards
Tony F

Dawn.
So sorry to read of your diagnosis, not the place that you really want to be!
People here are all in various stages and are more than willing to share help advice and experiences.
If you feel like it let us know your treatment, don't wish to pry but maybe we can be of support.
Regards
Tony F

Hi Eve
Just thought I'd do a little update whilst I lounge in the sun by the pool 😛
I'm in cycle 15 of RCD now although it hasn't banished the MM it has controlled it for now. Thalidomide didn't work for me, well nothing worked for me, but Revlamid has dampened it down so there's no reason that it shouldn't have the same effect for Slim.…[Read more]

Best of luck with your stem cell transplant, had mine in early February, this year, feel great now! Best of luck.
Regards Tony F

Hi Mavis,Tom and Eve,
Thank you all for lovely welcome. I am still finding my way around, but I kep popping back on, which is a good sign!:-)

The sun is out today, which always make one feel better.
hope all is well will you all today.

Karen xx

Hi Tony,
Just spotted this!
have to quickly reply and agree the staff are great!:-)

take care
Karen
x

Hi Michele,
Thanks for taking the time to reply. I am finding this a lovely friendly site. It is good to hear from people who know how it is. I had coffee last week with a girl from work, who said I look really well, which is nice to hear, but because you can walk etc, people think I'm cured (touch wood my kidneys have been ok this far). I am…[Read more]

Hi Mavis,
I am new on here and still having a look round. Had to reply to this and say here here, to being thankful!:-)
Take care

Karen
x

May just bump into you on the 6th June, my appointment is 11.15, same day.
I agree with you about the day clinic seems to be chaos at times, but he staff are great, first name terms these days!
Regards Tony F

Good read, I would like to hear the interview.
Good news about Red wine 😀

Hi Eve and everyone,
I agree, the failings are definitely in the GPs. I was having treatment for some months at a private osteopath based in my surgery. He said something was amiss with my back and went to see my GP to recommend he send me for a scan. My GP refused and just kept plying me with painkillers. All this happened approx a year…[Read more]

I was in the cell directly facing the kitchen. I think I was green cups, (chemo brain me!)

On the 6th June, I am on a clinic/consultant. at 11.25! But I am at the lower level.
My infusion is 23rd May. (day ward). The day ward staff are really nice, but is it me or does it sometimes seem a bit chaotic?
Take care
Karen