[david49Participant]

Good morning Beaming
I have been in remission for 2 years now, on a maintenance of Dara and Lenalidomide.
There has been good resolution of bone lesions. I had a major reconstruction of right hip and there has always been some pain from that and spine, especially when tired.
But life is very good. We have been on a few foreign trips, we manage to eat out and have a good social life. I realise there will be a relapse eventually but making the most of the current situation.
I just took the treatment one step at a time and followed the excellent advice from the medical team.
Best wishes
David
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[david49Participant]

Hi Beaming
Sorry to hear your husband has had this diagnosis. It’s always difficult to get such a diagnosis and the treatment plan seems daunting.
I was diagnosed with a high risk myeloma in October 22 when I was 73. It took a few weeks to reach a diagnosis and I required radiotherapy on spine and pelvis lesions before myeloma treatment started. After initial treatment I had the first of my ASCT in June 23 and the second, tandem treatment in November 23.
The treatment was not as bad as I feared and if anything the second round involved milder side effects than the first.
I also had my treatment in Southampton before transferring to Salisbury for isolation. The staff at Southampton are excellent and are the very best. Your husband will be in very safe hands and will get the very best and latest treatment.
Good luck and best wishes to you both.
David.

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