Paul, Jo, Terry, Mari & Amelie…

Thank you for your support. As usual, now that I know what I have to do I feel better equipped to deal with the disappointment and move on with as much fire and grace as I can muster.

This is a great board and I love it and all who frequent it muchly. 🙂

Dai.

Hi Bridget & Eve,

Thanks for your support… I have just arrived home from the hospital and a meeting with my consultant. She came down from her office, grabbed my file (big, bulging, with an easy to recognise tattered cover) and found an office. There she went through all the provisos and qualifiers for me to enter the 'Aspire'…[Read more]

Hi Bridget,

The holiday's finished and you are back at work… fighting MM and surviving with all bells and whistles sounding… so here's to Bendamustine becoming your best-pal-at-work. With your courage and tenacity and Ben's ability to inhibit you have an excellent chance at knocking MM back. 😎

Please keep in touch and let us know how…[Read more]

Me too Tom.. constipation is often treated as a joke but there is nothing funny about being on the receiving end. I have had several problems with it, a couple severe and one where I was so extended (stomach) that I ended up in hospital… luckily I had taken 6 (six) Movicol solutions that day and I ended up pooing for Wales (8 Caps).

I t…[Read more]

About time too… talk about dragging your feet. 😀

Well done to both of you… especially you Eve, you have fought tooth and nail to get to this point so enjoy every moment of the remission… as should Slim. 🙂 😎

Dai.

Hi Bridget and all.

Perhaps, like the new 'Life & Grief', there could be a 'Practical Support' section on the board. I see this section as a place for questions and advice on benefits (financial and practical) and general support issues.

I am sure that we could all benefit (excuse the pun) from the experiences of people like Bridget, people…[Read more]

Hi Kay,

Good luck with the PET scan on Friday… here's hoping that there is no sign of active disease and that your PP's are just playing up a bit and will start settling down soon. As a light chain bod I don't fully appreciate the intricacies of PP's but while the trend is showing a steady increase the increases themselves do not seem very…[Read more]

Hi Ed,

Thank you for your open and honest post.

I am sorry that you have had the need to find us but given your circumstances I am glad that you have. The information highway has a lot of wrong turns and confusing roundabouts… this site and this forum should supply you with all that you need regarding information and empathetic…[Read more]

Hi Eve,

My Birthday was on Xmas Eve and I spent most of the day out… the same for Xmas Day and Boxing Day. I enjoyed the first two but was glad to get home on Boxing Day… I had had enough.:-)

A big plus has been my appetite which is as good now as at any time since I first fell ill. I too have felt very tired since coming off Velcade…[Read more]

Thank you all muchly xxx. I had a lovely day, didn't overdo it and as I am out for the next couple of days I am going to keep going at the same pace.8-) 🙂

Dai.

Just back from lunch at my daughter's… Janet cooked and we had a wonderful lunch in good company. Janet looks relaxed… a day off tomorrow as the other Gran is cooking Xmas dinner. As I write this I can hear Janet putting on the kettle and humming… she is happy… and looking forward to just the two of us until 12 noon tomorrow.

That it…[Read more]

Like what everyone else said…

to everyone…

with knobs on.:-)

Dai.

I wish you a happy, love filled Xmas holiday David… put MM to the back of the agenda for a few days and relax.:-)

Dai.

I have noted that a lot of people with MM (here and elsewhere) have have problems with crushed vertebrae either at prognosis or shortly after… mine certainly started that way.

As for rib pain… I have had several gripes recently that semi-convinced me that my MM was back (after 8 weeks remission)… but.. as Janet noted… I have been…[Read more]

Hi David,

Allowing for senior moments (I will be 58 on Xmas Eve) my short term memory has been shot to pieces since the onset of MM. I have blamed the meds… after 3.5 years of daily morphine, plus the other kinds, both permanent and temporary, I feel mentally blunted. I struggle to recall names and facts which I find thoroughly frustrating…[Read more]

Hi Keith,

Empathy abounding from me. I had a chest infection, with meds from my GP, when I had my Flu/Pneumonia jabs on the same day. 24 hours later I was in hospital with a temp of 38.6 and one of the nurses said that she had seen this before after the dual shots. Out of hospital with another couple of strong anti-biotics and then coughing…[Read more]

Hi Liz & Kev,

I live in Aslockton, about 2 miles beyond Bingham off the A52. I am also being treated at the City Hospital and often sing its praises on here. 🙂

I see the Prof sometimes but my usual consultant is Doctor Cathy Williams whom I hold in the highest regard. A new Nottingham Support Group had an initial meeting at the end of…[Read more]