Hi Gilly,

Its great to hear from you and even better that you are still going strong in remission. I hope we don't hear from you till next Xmas.:-)

Dai.

Ditto David, absolutely ditto.

Dai.

Hi Eve,
I had a tooth extracted pre-SCT… it was carried out at Queen's Nottingham by a Surgeon/Dentist. The extraction was quite straightforward and I had to wait an hour for a post-op check and then was sent home with a course of preventative anti-biotics.

No further problems encountered but I was told that all future tooth work would be…[Read more]

Hi Glynj,

Many of us have had radiotherapy as part of our treatment… tumours on and around the spine seem to be the most common but elsewhere as well. Where do they plan John's radiotherapy?

Dai.

Great news Eve.

As with me, if they cancel the latter treatments then the earlier ones have done the job.. Enjoy the news and enjoy Xmas… hopefully the BMB result will clear the way for a truly 'upwards and onwards' 2012.

Has Slim chosen his Olympic event yet? 😀

Dai.

My stepmother Dorothy died last week, 24 years after my father. Her funeral is tomorrow and I am going, along with 2 brothers and 2 sisters. There is to be a church service followed by interment at the town's main cemetery… my father was cremated but Dorothy wanted to be interred next to her first husband of 28 years… her 2 children asked…[Read more]

Hi Helen,

All things being equal I would prefer to stay on Clexane rather than switch back to Warfarin. With Warfarin the object is to get your blood to a consistent viscosity (thickness)… something like 3.0 to 3.8 for instance. To achieve this you are put on a strength of Warfarin and then your blood is measured after a week. Depending on…[Read more]

Hi Gina,

I am so sorry that your Mum has passed but I am glad that her passing was both painless and peaceful. I am also glad that she shared your big day by seeing you off from her house, you can take it for granted that she was full of pride for you.

My thoughts are with you and your husband and also with Luke and Josh… while I am sure…[Read more]

Hi Helen,

I have had 2 DVT's (Deep Vein Thrombosis) since being diagnosed with cancer (initially Bone Cancer amended to Myeloma 14 months later). The 1st DVT occurred after extensive radiotherapy, the 2nd during Velcade (although my consultant has informed me that DVT's are not normally associated with the treatment).

On the first occasion…[Read more]

IUM… difficult but I'll take on the challenge and make it easier for the next player.

GERANIUM

leaving… IUM :-0

Oops… 😉

Dai.

For my first Xmas with Janet I bought her some hiking boots (purple and brown) and a set of waterproofs… my sister promised me that Janet would start distancing herself politely in the new year but she loved them. We took a cottage in Bakewell, Derbyshire for the post Xmas week (moved in on Boxing Day) and we went walking everyday… nothing…[Read more]

Hi David,

My legs exploded after my pulmonary embolism back in may '08 and they put me on Warfarin. My legs eventually returned to normal but I was left with very dry skin on my legs, especially my heels, complete with matching patches that have never gone away. When my DVT reappeared this summer the dry skin returned free of charge, again…[Read more]

DED = DEDICATED

Leaving TED

Dai.

🙂 I sent you one specially… his name is Josiah.

Great news… take care.

Dai.

I'm glad we are doing this again. 😀

My name is Thomas David Crowther but apart from my mother (who calls me David) I am known as Dai…a Welsh diminutive of David. I am married to Janet and we live in a village 12 miles south-east of Nottingham. After 15 months of mis-diagnosis and. frankly, fourth-rate care, I finally saved my life by…[Read more]

Hi Gina,

Excellent photos, a lovely collection in remembrance of the day. I appreciate why your mum couldn't attend the service but it must have been lovely for her to have you leave from her house… it was a beautiful way of including her as part of your special day.

Well done and congratulations on your wedding… I wish you nothing but…[Read more]

Hi Jo,

If they can offer you Velcade sub-cut then demand it… there is no comparison – sub-cut has far less side-effects, is easy peasy to administer and has none of the kerfuffle about finding a vein and butchering the back of your hand with cannulas.

Every new Velcade patient at my hospital is being treated this way – so don't 'wait and…[Read more]

Hi all,

Well this started as a test for the picnik software but ended up as 'Guess Who'… in any case the prize goes to Min… I am second from the left with curly hair and flyaway trousers… although I was a mature student (25) at the time of this photo there are at least 4 Phd students at or about my age in the line up… as a matter of…[Read more]