[b]INT[/b] leads me to:

[b]KNITWORK[/b]

… leaving you [b]ORK[/b].

Good morning all 😉

Dai.

HI ted,

I think we are in for another cold and frosty winter… have you had your flu jab… and your pneumonia jab for that matter (the latter will last for up to ten years or so I am told.

Keep warm and well

Dai.

It is very frustrating to be pulled up by something taken out of context and like David I have sat scratching my nose wondering where I have c*cked up. :-/

Personally I would rather that there was no such software applied… while I understand that people could be genuinely offended by coarse and inappropriate language I don't think that it…[Read more]

Thanks for that Wendy – it certainly sounds the part and it was interesting that the test case they chose just happened to be connected to the feet. 🙂

I'll certainly mention this to my consultant… in fact I think I'll ring my lead nurse tomorrow and ask her to chase it up. 😎 My life would be totally different if I could get a 50%…[Read more]

Hi Eve,

I am certain that the staff's unease will soon go away but the benefits of your complaint will last much longer, hopefully permanently.

Without being too simplistic I do believe that if you feel better and look better you generally are better – after such a long and drawn out period Slim deserves to look feel and be better – and I am…[Read more]

Hi Paul,

I make a point of trying very hard not to long for past abilities… my bone damage and PN limit my mobility although I walk unaided and generally 'look the part'… I accept and I am grateful for this existence and treat it as phase 2 of living.

Saying that I can quite happily reminisce about happy times and achievements in or…[Read more]

Hi Gill & Stephen,

I can't help with this combo… but on the subject of wind, which is often thought of as somehow comical but in reality is not funny at all.

A strategy I find helpful in public places, particularly supermarkets, is to find a little old lady (I find that you are spoilt for choice with little old ladies in supermarkets,…[Read more]

Hi Paul,

Great news that your CDT treatment has done its job, great news indeed. 😎 😀

I had my CDT treatments over the summer of '09 and after a hitch or two I had my SCT in March '10. The hitches prevented a pre-Xmas SCT (I would have been due out on or around the 20th December)… which meant I was in remission for the Xmas…[Read more]

My condolences for the grief you must be feeling for your lovely niece David.

I had a cousin Mandy who was devastated to hear my news re: Myeloma… she sent me messages of support on Facebook and the occasional email whenever she heard of minor or major successes. I hadn't seen her for many years (25 or more) and yet she responded with…[Read more]

I wouldn't worry too much about the apparent 'cold shoulders' Eve. My nurses actively encourage complaints from long term patients… I believe that they are confident that their care is professional and generally A-OK and that the problems are almost exclusively those related to processes and procedures… if they are addressed then the overall…[Read more]

Hi Jo,

I am so sorry that your CDT remission has come to an end… but 2 years 8 months for a frontline treatment remission is wonderful and it shows what can be achieved. It is well documented here that I wish I had stuck to my guns in wanting to see how long I lasted on my CDT remission instead of diving into the SCT route… mainly because…[Read more]

Hi Sarah,

Its heartwarming to hear that Henry seems to be responding well to his CDT treatment… it worked well for me (also Kappa Light Chain – 'Bence Jones' Myeloma).

I also had a couple of lesions on my head but CDT saw them off, leaving two small craters that my wife Janet takes pleasure in poking (so do I… like the equivalent of…[Read more]

Hi Bridget,

I am glad that you are settled on a treatment and I do hope that the side-effects diminish as you get into the flow.

Good luck with the injections, remember to swap sides… mine seem to be a semi-permanent feature and I found I was developing small lumps, so I am more careful how I 'map' my injections. I swap sides, starting as…[Read more]

Hi Penny,

Can I suggest that you introduce yourself in the newcomers section – tell us a bit about your background etc… I am sure that there are many here who would like to say hello to you in your own space. 🙂

Dai.

Hi Abi,

Although the general treatment plans may seem quite uniform MM is a very individual disease. Although your Dad may seem to be in the 'later' stage it is surprising how well some people respond to treatment… kidney failure included. We have some people on this board who have started with similar symptoms to your Dad who have…[Read more]

My Dear Eve,

Wonderful news… at long last you have something tangible and long term to celebrate. I say long term because I know how worried you have been for such a long time without any real encouragement from treatments. Well now you have and it proves that Slim's body is fighting this d**ned disease… fighting and winning.

I…[Read more]

I could please you by offering SPION KOP Eve but its two words so I'll offer ONIO.

Leaving you ION??? Deja Vu anyone?

Dai.

I could please you by offering SPION KOP Eve but its two words so I'll offer ONION.

Leaving you ION??? Deja Vu anyone?

Dai.