Thank you friends,

From the M42 services to the conference was closer than home but Janet was concerned that my immune system might be compromised by others. I am off to see my GP this morning.. feeling better than I have for days (but still wheezy).

I am back for my first consultants meeting next Monday and amongst all the good news from…[Read more]

So near yet so far…

We set out this morning hoping for the best… I still had my cough but much improved over the past few days. When I got in the car I had a coughing fit which I put down to the change in atmosphere or temperature… I had another when we stopped to fill up with diesel but not as bad… then we stopped for a cup of tea at…[Read more]

🙂 I am happy to report that while David hasn't logged in or replied (and I was beginning to get quite concerned) I have just seen David's reply in the '9th Of November' thread in 'General' and it is dated Sunday 6th November @ 11:48am… so wherever he is it has nothing to do with the tragic accident local to his…[Read more]

I will make the decision tomorrow (or rather my GP will) but my attendance is in doubt because my chest infection is hanging on after three weeks of coughing and hacking. My GP gave me anti-biotics 3 weeks ago which were superseded at the end of that week by the hospital medics with two lots of 7 day anti-b's… 9 days later and I am still…[Read more]

Thank you all, especially Eve for getting the ball rolling and keeping it going. 🙂

You have certainly given me food for thought and I shall re-read all your comments, suggestions, opinions and experiences. From what I can tell from Craig's original post and the agenda of the conference he/they want to know how their work can be of help to…[Read more]

Hi Eve,

I would welcome any input by the way of ideas, questions or experiences. They are asking for a short (I imagine 20 minutes) contribution on the topic of the 'Patients Experience'. Janet has been asking me about the practicalities of the day but I can tell her very little as I just don't know. I have been waiting on further…[Read more]

Hi Debs…

I was just wondering about the Revlimid maintenance therapy as you are recovering from your SCT. Does it have any side-effects? I would have thought you have enough on your plate without the complication of accessorised treatment. 😐

But hey!!! If it gives added value to your recovery by way of making it stronger and longer…[Read more]

Hi Only You,

I had a similar experience to your Mum…

I was given my dose of Cyclophosamide via a cannula in my hand, followed by my course of GCSF injections at the end of November 2009. I finally had my Hickman line inserted (on a Friday, with my harvest due to start on the following Tuesday) but I was back in that same evening with a…[Read more]

Hi Keith,

Let's hope the medication sorts out the itching and allows you as normal a life as possible during your remission. You will continue to grow stronger from this point and while everyone is different I believe that come the 8 month marker you will feel fit to take on the world. 😎

Best regards 🙂

Dai.

Hi Gina,

I am sorry that any benefits from the treatment has been overtaken by these other complications.

I am sure the staff at the hospital and the district nurses when you get Mum home will ensure that she remains as comfortable as possible and pain free. My thought are with you and your family and especially your brave Mum at this…[Read more]

Thanks Jean,

I'll take your ION and give you:

IONOSPHERE

leaving ERE for the next player.

Dai.

Hi Jim,

I am sorry that MM found you and glad that you have found us. MM used to be regarded as an old people's disease but as someone has already suggested, testing is so much sensitive and better these days.

RCD does seem to becoming the norm… my first line treatment was CDT (Cyclophosphamide, Dexamethasone, Thalidomide). CDT worked…[Read more]

Hi Gina,

I am sorry that your Mum is going through such a rough time and that you have to carry the burden of uncertainty.

I think that the decision to take her off treatment for her MM is right while they treat her infection and then hopefully clear her lungs… but its a two edged sword regarding the question of the growths… if they…[Read more]

Ouch >:-( that's a new one on me (he says, cradling his… wooden desk). I had some of the marathon ones but never any testiculatory tenderness. I'll gladly pass on that. 😎

Dai.

Glad to be of help. 😀

Dai.

Hi Gill,

It means: The state of being able to achieve honours

Something I stumbled upon… not for everyday use,:-D

Dai.

Well I'll turn to Mr Shakespeare for a little help with this one. 🙂

ION

Gives me: Honorificabilitudinitatibus

Which allows you lot to jump on the bus.

BUS

Dai

Thank you all you lovely people for your messages of support,

I got home this afternoon with 2 lots of anti-biotics… 1 for my chest infection and 1 for anything else that might be lurking. 😀

I was admitted at 6:30pm last nigh with a temperature of 38.8 and feeling rather grotty all round. They gave me a new super-duper anti-biotic (the…[Read more]