hello jean
my name is stephen.thankyou for contacting me.i was caring for dawn normally from 1300hrs on work days, thats when i normally finished work.my place of work worked round me for 18 months & im very gratefull for that.my mother inlaw looked after dawn until i got home from work.i was on the go for most days for 18 hrs aday.i didnt mind doing it i just wanted to make life easier for dawn.i had a routine & it was ok.i do miss her so much.i think this website is a good idea.it might help some of us who are trying to cope or have been going through this horrible illness.it might be good to talk about it.my thoughts are with you & your family.
best wishes
stephen x