[debgParticipant]

Hi Bren,

Such a massive shock, we are still reeling and a bit in denial, as thankfully my hubby has not symptoms.

Hope you all keep smouldering

Deb x

[debgParticipant]

Hello Mira,

So sorry to hear you may have to have treatment earlier, I really hope this isn’t the case.

Thank you for the tip about the blood clotting injection, I will ask our doctor.

No one advised us about Curcumin. I’ve read quite a bit and there seems to be some good reviews about it. Also that it can’t seem to hard. Our doctor said she didn’t know anything to be able to advise taking it but she said she couldn’t see any harm. My husband is also eating 6 bitter apricot seeds per day, recommended by a friend with a dormant leukemia.

Wish you lots of symptom free time.

Ps my cousin is a medical nutritionalist and whilst Myeloma isn’t her speciality, she’s looking into it for us. She also recommended a book called Radical Remission by Kelly Turner, I’ve just ordered that.

[debgParticipant]

Hi all,

We are in the same boat, my husband just got diagnosed with SMM. Our world was turned upside down as first we were told MM then got the ‘better’ news of SMM. My husband is good at compartmentalising things his head, I’m not! We are doing our very best to be positive though.

Michael, congratulations on your remission! You mentioned you’re on curcumin, we’ve started my husband on this. I read about the following plan, do you think this is a good way to take it?

1mg for 7 days, 2mg for next 7 days, 4mg for next 7 days and 8mg onwards. This sounds like a lot but it’s hard to find what coudld/should work.

Thanks for any tips from anyone.

[debgParticipant]

Hi Mira and Bren,

My husband has just been diagnosed with SMM. We have a trip planned to New Zealand and Fiji in January. Mira, did you find out any more about precautions? Flight sox I guess? Any drugs to carry?

Bren, what does of Curcumin are you taking? We’ve started my hubby on 1mg per day and will move up to 2mg per day after 7 days.

Thanks

[Author]

Posts