Just a point about MRI /MRT scans. We attended the 10th anniversary do of the local self help group and they invited some of the top medics to attend and give lectures. One of the things that came out is that an MRT is more accurate at determining the level and positions of MM in the body. My German is a bit poor but the gist was that with MRT…[Read more]

Hi Ang,

Really good news then. The high temp I think everyone gets but certainly combined with Flu would have been scary for anyone. Let’s hope everything continues to improve. I’m afraid I’ve had a few days of Diarrhea and sickness which the MM nurses put down to either an infection or the stomach being damaged by the Mephalan. The medics don’t…[Read more]

Hi Rebecca,

I can’t be doing too badly then because I’ve taken the bike out a few times without too much trouble. I walk our daughter to school daily and back again – although it’s not far and I try to do some of the housework. We are moving house in March so that will be test of stamina I’m sure. Unfortunately our daughter is coming back from…[Read more]

Hi Eve,

One thing I’ve learnt from reading your posts is that you are the one to be obeyed, you are the oracle, the fountain of all knowledge. So I will stop worrying and hang in there for the long term.

Hi Kay,

Saying don’t worry is a bit like King Canute telling the waves to go back – it’s not going to happen. However you are here now amongst a wealth of knowledge. I think the important thing is not to bottle it up, talk to people, don’t be by yourself about it. The more that know, the more help you will get. The worrying about every ache, pain…[Read more]

Certainly a positive for us following behind you to aspire to.

Hi Wendy,

Don’t panic, you are going through the same emotions as virtually everyone else on this website has had. The good news is that it’s been spotted so it means they can treat it sooner. Have you read up on it yet, if not do so but be wary of everything you read on the internet. As you’ve probably been told, MM is such an individual desease…[Read more]

Had a bit of a set back this weekend – nothing major so far. Our daughter has had a cold /cough for the last week and up until Friday I managed. Then a cough started , still there Saturday but no raised temperature. Yesterday my voice became hoarse so my wife was concerned so she phoned the hospital. So far they believe it’s viral, I need to…[Read more]

Read the last couple of posts, Andy has hit the nail on the head. Drugs are available if you are willing to pay and take the risk – after all you can get any drug that’s available in another country if you are willing to pay.

Mark, you’ve raised a relevant point but I would suggest that the party your MP belongs to may affect his response. I…[Read more]

Good news Scott, It’s not much fun but as others say it’s doable. Hope it goes well,

Richard

I think there are two issues here, 1st the drug companies do have an almost monopoly on drug pricing and do make big profits for shareholders. What you have to remember is that a lot of the big institutional shareholders are pension funds and insurance companies. The pharmaceuticals pump a lot of money into peoples pension funds.

Next not…[Read more]

Right, just come back from the hospital, they did blood and they show my white blood cell count is up to 3.2, just another 0.8 to go and I’m in the normal range 🙂 Doctor was very happy, I can relax my diet a bit but still have to continue with mouth wash and a drug to reduce mouth infection – not the dreaded orange ampho stuff fortunately.…[Read more]

Hi there, sorry you’ve had to join us but at least you are better informed than many and gone through the trauma of a cancer diagnosis before. My wife tends to read and research everything whereas I don’t worry about things I can’t change. She thinks I’m just a bimbler but I like to think life is too short – especially now – to worry about…[Read more]

That’s good news Ann, I’m surprised they will let him out, the side effects from the Mephalan are not nice. All the best for the next few weeks.

Richard

Hi Ang, Carol.

Glad to hear you made good progress Carol. I had the same and still do with the dripping nose. My wife won’t let me out without a face mask and that just exasperates the problem. Have to throw away the mask after a few minutes because it’s sodden. It was a couple of days at home before the runny nose improved but I still have…[Read more]

Hi Jeff,

I don’t think the LRI is isolated, it often takes me upto 2 hours to wait to see my doctor at Mannheim. I don’t know what they do at the LRI but here I arrive, within 30 minutes I have blood taken and they wait for the results. If it’s just white cells, platelets and haemoglobin, that’s done in a couple of minutes but normally they do a…[Read more]

Hi Dusk,

I read your original thread and please don’t think people are gunning for you. Reading through the posts I would suggest that people were a little unsure as to what you were saying and when some have had very stresfull times either as a carer or as a sufferer then they possibly felt you were being a bit too negative. Anyway, that is in…[Read more]

Yahoo! Probably the best news you’ve had in ages. Hope you keep it up for a long while yet. Will they do a BMB to confirm?

I don’t think the medics base all decisions on cost even though the bean counters will want her consultant to. If she is responding well to chemo and the consultant believes she is going to have a full or almost full remission then SCT might not be necessary. Only your mother’s consultant will be able to make that decision. The other point is that…[Read more]