[doddywarrenParticipant]

Hi Rabbit

Thanks for your message, advice and honesty, again much appreciated.
Great to hear there are new treatments coming along.
Dids

[doddywarrenParticipant]

Dear Shelagh

Thank you so much for your reply it’s very much appreciated it has eased my worries some and no you didn’t go on too long 🙂 So great to hear you are feeling pretty good.
My husband is 66 and was relatively fit too.
We are still waiting for the chemo to start, he had a full body MRI last week and the results aren’t back yet so we assume this is delaying things. From the first MRI in sept to now, it’s been a few months so All this delay is stressing me out we just want to get started.
Our consultant, we have been told, is the best in the South of the UK, we live on the Isle of Wight, so that is very good to hear.
We do have good support from friends and family but I still feel pretty lonely, I am not good at asking for help.
Thank you for your support
Dids

[doddywarrenParticipant]

Hi
My husband was diagnosed with HR Myeloma just before xmas, just as he was planning to retire in the new year. He has two markers, 1 & 17. He is hoping to start a weekly cocktail of 5 drugs this week, then 1 possibly 2 SCT later in the year.
Its all be such a huge shock like everyone has said on here. It started with back ache, so he had blood tests, X-ray and ultrasound and nothing showed up. He thought when the ache moved from his back to his hip area, it was sciatica and then an MRI showed a lesion. Then 2 biopsies later, the 2nd confirmed it was myeloma, along with the genetic test.
However He is being amazing and very positive, but I am struggling and I am very scared.
I am worried about all the treatment and their side effects.

We haven’t googled, as too anxious to and I am slowly looking at things on this website and forum which is helping and can see everyone is on there own journey but it is good to see all the positive messages re remission etc. I know I need to learn more about it but I get so panicky.

We had before diagnosis, started to reduce our sugar intake, as we heard it was a source of inflammation, however our intake wasn’t particularly high, while already eating a healthy Mediterranean Diet. His consultant said some people take Turmeric so he has started this too.

Best wishes
Dids

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