[dollydreamParticipant]

Thanks Mulberry, I think we’ll be doing the same! He says he’s been a bit… Memory loss…. But I think he has.. So another dose today to be sure.
He gets really annoyed when I ask him!
Onwards and upwards eh? X

[dollydreamParticipant]

Hello again all… Hubby is a bit more like himself during this week off the Dex, but is tending to constipation. I worry about this, because of his bowel resection, so he has had a Laxido this afternoon. Fingers crossed. Its been 2days..too long!
Eating well, cheerful most of the time, and having a nap when he wants to. We went for bloods this morning, and have a call from the nurse tomorrow. So the first week of the first cycle is done. X

[dollydreamParticipant]

Thanks Mulberry, yes, as far as I know, he sleeps at night too! He has a blood test due on Wednesday, and we speak to the lovely nurse on Thursday, so will discuss with her… We went to church this morning, and he was fine, then fell asleep before eating a good lunch. Then slept all afternoon, ate tea, made a brief trip to shut the gate, asleep again, and aside from taking a tablet. Is asleep again. It does seem very very excessive, he says he is fine!!!

[dollydreamParticipant]

Me again! Is it normal to sleep so much at start of treatment? Hubby on Lenalidomide and Dexa, along with various other meds. He sleeps for at least 2 hours at least 3 times a day, shows no interest in doing anything really, and says he’s fine. Just started a week off Dexa.He was at least mowing some lawns, and taking an interest before all the meds started. I guess it’s overwhelming. Any advice? He won’t go for a walk.

[dollydreamParticipant]

Well we’re 3days in, and the only things to have happened are one bout of hiccups.. Dexa…. And an awful lot of snoozes. Eating well and sleeps all night! So no insomnia at all.. Yet!
Unfortunately he has memory loss, so finds all these new tablets really confusing.. But I think I have it organised, so fingers crossed. Blood test next week. This is a wonderful forum. Thank you!

[dollydreamParticipant]

Thank you so much.. That’s really reassuring honestly. We started the regime today.. He has bucket loads of pills to take, and we were given a chart to record them.. Really useful. He had his first lot of Dexa at 9.15…and is now snoozing lol! I hope he sleeps tonight. Please may I keep in touch! Xx

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