doyleroz replied to the topic Newly Diagnosed MGUS in the forum Smouldering myeloma / MGUS 6 years, 6 months ago
Hi Yvonne,
Sorry to hear you have jumped from MGUS to smouldering. I am still still trying to get my head around things. I am sure you get to another stage and it is a case of getting your head around a different set of rules! I walked out of my appointment and didn’t ask any questions. Lots of things now I wish I knew answers for. But I found…[Read more]
doyleroz started the topic Newly Diagnosed MGUS in the forum Smouldering myeloma / MGUS 6 years, 8 months ago
Hi there.
Just back from my appointment after biopsy last week. Haematologist said I have MGUS. Biopsy showed 5% myeloma cells he said and my paraprotein level are still at 6. Forgot to ask was I still anaemic. So I have to go for bloods every 6 months and check up. Hopefully I just stay like that. They also need to watch my kidney function as my…[Read more]
doyleroz replied to the topic Help! Not sure what it all means… in the forum Newcomers 6 years, 9 months ago
Hi
Had my bone marrow biopsy this morning. Also had a bone marrow aspiration and bloods. Came home and slept on and off for most of the day which was probably no harm! Back to see the haematologist next Wednesday so fingers crossed. I did have a dexa scan Graham which my GP said was ok. I thought this was odd as my last one in 2012 in Australia…[Read more]
doyleroz replied to the topic Help! Not sure what it all means… in the forum Newcomers 6 years, 9 months ago
Hi Graham
Thank you so much. I am getting a little anxious now. My biopsy is in the morning. I have been living with chronic illnesses since I was 22. And I think I do pretty good. But you never want to hear the big C. But like anything you will deal with what happens and figure it out 🙂. So fingers crossed! Just another journey to negotiate.
xx
doyleroz started the topic Help! Not sure what it all means… in the forum Newcomers 6 years, 9 months ago
hi there,
I have a complicated history. I had a kidney transplant in 1995. It has been fine until the last few years and my creatinine has been starting to creep up. I have been complaining of bone pain for a good few years with some fractures. I have lost feeling in some of my toes. I have been told I have neuropathy. I get dreadful IBS and…[Read more]
doyleroz became a registered member 6 years, 9 months ago
