[doylerozParticipant]

Hi Yvonne,

Sorry to hear you have jumped from MGUS to smouldering. I am still still trying to get my head around things. I am sure you get to another stage and it is a case of getting your head around a different set of rules! I walked out of my appointment and didn’t ask any questions. Lots of things now I wish I knew answers for. But I found out now I am on 4 month appointments so back sooner than I thought. I was wondering if you could tell me about the difference in biopsy results. They said plasma was 5% and cd138 was 15%. Also wondered about everybody having PET scans done. I haven’t had that done. Should I be asking for that?

Thanks everyone,

xx

[doylerozParticipant]

Hi

Had my bone marrow biopsy this morning. Also had a bone marrow aspiration and bloods. Came home and slept on and off for most of the day which was probably no harm! Back to see the haematologist next Wednesday so fingers crossed. I did have a dexa scan Graham which my GP said was ok. I thought this was odd as my last one in 2012 in Australia showed ostapenia. But they did scan different areas.

 

xxx

 

[doylerozParticipant]

Hi Graham

Thank you so much. I am getting a little anxious now. My biopsy is in the morning. I have been living with chronic illnesses since I was 22. And I think I do pretty good. But you never want to hear the big C. But like anything you will deal with what happens and figure it out 🙂. So fingers crossed! Just another journey to negotiate.

xx

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