sorry i meant to say

You need to get the best of treatment and i cannot recommend highly enough the National Amyloidosis Center at the Royal Free  , if you haven’t already get your GP to refer you for an assessment and consultation there.

sorry i meant to say    <span style=”font-family: Arial, Oswald, ‘Helvetica Neue’, Helvetica, Helvetica, Arial, sans-serif;”><span style=”line-height: 19.5px;”>You need to get the best of treatment and i cannot recommend highly enough the National Amyloidosis Center at the Royal Free  , if you haven’t already get your GP to refer you for an asses…[Read more]

Hi Linda,

I’m Duncan 52 and living in Torquay Devon.

I got a diagnosis of trachea and bronchial tree amyloidosis 3 years ago. Amyloidosis is a rare thing to have and is different for everyone, there is a lot of scary stuff on the internet that’s not always correct  , i must say this is a very good site to have found, lots of good videos and…[Read more]

Hi,

Thanks for the post , no i hadn’t , i go to the royal free every  6 months and a cardio thoracic surgeon lasers my out in plymouth on a regular basis.

Thanks for the info on Amyloidosis Awareness on  face book i will check it out.

Bye for now

Duncan

Hi eve,
Its such a small world i was attached to 29 cdo and cdo log regt spent my last months in Belize with , before leaving the navy nice way to leave.

Sorry its taken so long to get back to you, came into derriford Hospital last Wednesday, to have a routine i thought throat laser, to remove some of these deposits, which build up, ok…[Read more]

Hi Eve,

Thanks for making contact, my partners just got a new ipad, really impressed with it finds it much better than having to carry a laptop round. excuse my ignorance you mention your at kings not sure what a SCT is but will have a look in a minute,but wanted to say hi first. I've had some good news, was phoned today have got a 2 day…[Read more]

Hi everyone,i hope i'm posting in the correct place, apologies if not and a point in the right direction would be appreciated .
Until About 6 weeks ago i considered myself ( no athlete) but quite a fit guy, walked the dog for 2 hrs a day, hard core sub aqua diver, and a very busy job and life, and then on morning of my 49th birthday suddenly…[Read more]

Hi everyone,i hope i'm posting in the correct place, apologies if not and a point in the right direction would be appreciated .
Until About 6 weeks ago i considered myself ( no athlete) but quite a fit guy, walked the dog for 2 hrs a day, hard core sub aqua diver, and a very busy job and life, and then on morning of my 49th birthday…[Read more]