ebbw

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  • #138199

    ebbw
    Participant

    Thank you for your reply.I did post yesterday but sent it to the web team! I did say I was new to this.I found your advice very helpful.My husband also has neuropathy from velcade and finds that more difficult to cope with than the MM at times.He finds gentle massage helps a bit.The zometa also made his calcium levels plummet so low he couldn’t walk but that was soon fixed and now he has a half dose of that and half steroids if he needs them .We will be very OCD about cleanliness.Saw him yesterday and he’s doing quite well considering.We are going to see how it goes looking after our grandaughter.If we can continue i think it will be a good distraction for him.She is so funny and fills our lives with such joy.All the best for a long and happy MM free time.

    #138197

    ebbw
    Participant

    Hi ,I’ve never posted before so hopefully this will be read by mash.could I ask you how you found things when you were discharged .my husband is day 7 post sct.we usually have our 2 year old granddaughter during school term time and we are wondering how we will cope.hope you are feeling well.regards

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