webteam replied to the topic Discussion forum categories… in the forum General 14 years, 7 months ago
Hi David,
It's something we could set as a global setting, a bit like the threaded vs flat default setting. I will add your suggestion to the developer list as it's a good one. I'm pushing the developers to add more of the features you find on other forums and individual preferences for this sort of thing is high on my…[Read more]
webteam started the topic Registration guide…. in the forum Newcomers 14 years, 7 months ago
Hi Folks,
I've put together a quick guide to walk you through the registration and logging on process. Hopefully it will help if you're having trouble getting access to the site. Don't forget you can also email Andy or myself at webteam@myeloma.org.uk as well.
Cheers,
Stuart.
webteam replied to the topic Discussion forum categories… in the forum General 14 years, 7 months ago
Thanks Norman,
Great suggestion, I've added a Newcomers heading and I'll be adding some quick guides shortly about registering and editing the profile photo. I guess we should have had these from the beginning.
We're still pondering the wording for the other suggestions.
Thanks,
Stuart.
webteam replied to the topic Discussion forum categories… in the forum General 14 years, 7 months ago
Hi Jim,
We have a search functionality available but it's not working 100% so I've left it out for the moment. It should only search the discussion forums but currently it searches the entire website! I'm waiting on a fix from the developers, once I have it I will put a search box above each category and once above the entire forum. This will…[Read more]
Gaye replied to the topic I got here at last in the forum General 14 years, 7 months ago
Welcome to both Gill and Ian and looking forward to seeing further additions in the Rogues Gallery!8-)
Love, Gaye x
webteam replied to the topic Welcome! in the forum General 14 years, 7 months ago
Hi Dai, I have been in touch with Gill and fingers crossed we will see her posts in the very near future!
The problem has been with a couple of email clients (aol and btinternet) not liking our 'email verification' email..
I had a look at an example on aol yesterday and found the email in the spam folder. I haven't had a chance to look into…[Read more]
Gaye replied to the topic Knock knock ……….. in the forum General 14 years, 7 months ago
I think it says you have an extensive vocabulary Debs!
Gaye x
Gaye started the topic The Blessed Dex!. in the forum General 14 years, 7 months ago
It never occurred to me about the terrors that Dex must hold for people such as Debs who have yet to experience its little quirks but her recent posting gave me some idea. Debs, we can't take away its side effects but I would like to offer a new word to describe it.
Kevin started the Dex Devotee Club of which I am a proud member, Gill has used…[Read more]
Gaye started the topic Knock knock ………… in the forum General 14 years, 7 months ago
Min suggested that we have a Knock, knock catgegory for jokes and other non myeloma related issues. Well I would like to start it off with something I read yesterday about a Countdown programme this week, where all the 9 letters were used by one of the contestants but not in the way the producers would have wished for.
The letters were (and…[Read more]
Gaye replied to the topic Discussion forum categories… in the forum General 14 years, 7 months ago
Yes I totally agree with Min's suggestion. We have quite a few wags on this website and it would be good to have a totally non myeloma section. We all have lives as well as myeloma, so I am all for it.
Best wishes, Gaye8-)
Gaye replied to the topic Bonfire night in the forum General 14 years, 7 months ago
Dear Lee – it was a wonderful display but when the first crash came I nearly fell out of my seat! But the stealer of the show for me was little Amy, not only for her lovely words about Grandma but also for her accompanying dialogue to the show – pure joy!
Thanks Lee.
Gaye x
webteam replied to the topic Discussion forum categories… in the forum General 14 years, 7 months ago
Hi Debs,
The automatic subject update was a mistake I'm afraid…but will return on Monday! The developers accidentally released a new version into the wild.
I've managed to grab all the old forum posts into a document so we're half way there on that front. Just need to find a way to put them into the new forum. Hopefully we can automate…[Read more]
webteam started the topic Discussion forum categories…. in the forum General 14 years, 7 months ago
Afternoon All,
I've had a few requests for some additions / changes to the discussion forum categories. I'm starting this thread so you can all add your suggestions underneath.
Currently we have :
General
Access to treatment
Transplants
Peripheral Neuropathy
Under 50s
Let me know what you think of these…[Read more]
Gaye replied to the topic Starting CTD in 2 weeks in the forum Under 50s 14 years, 7 months ago
Hello Debs – I'm not sure if I should be here as I am way over 50 but just wanted to say good luck for the start of your treatment. I only had a year of smouldering and then the b****r needed treatment. I have not had CTD so can't answer your questions but I do hope that it treats you kindly. As for the dex,:-S well I'm afraid it has to be…[Read more]
Gaye replied to the topic Mum back in hospital after a nice holiday in the forum General 14 years, 7 months ago
Hello Michelle – sorry to hear Mum has pneumonia and I do hope that they can sort her out very quickly – let's hope as quickly as Bridget. How typical – I don't want to spoil the holiday. Yes, she probably is stubborn but sounds like a fighter as well.
Please wish her well quickly so that she can start on her next treatment.
Gaye x
Gaye replied to the topic Legit! in the forum General 14 years, 7 months ago
Yes, we all seem to like it on here so the more the merrier and now you can see us in all our glory. Glad that you could join us at last!
Gaye x
Gaye replied to the topic KCH here we come in the forum Treatment 14 years, 7 months ago
Dear Sarah – Like David I wish both you and Gordon all the very best as he goes for his second SCT. I think I was more anxious about my second SCT because having gone through one I somehow knew what to expect but thankfully all was well. I am sure it will be for Gordon too.
Will be thinking of Gordon in hospital and you going mad with the…[Read more]
webteam replied to the topic Welcome! in the forum General 14 years, 7 months ago
Unfortunately that's not currently possible. We've been talking to the developers about customisation options, so each user of the site can set their own preferences. There are plans to develop the profile pages further so this is the kind of feedback we need, thank you.
Stuart.
Gaye replied to the topic Test prior to SCT in the forum Treatment 14 years, 7 months ago
Don't think you can get away with not having the tests David – there have to be some perks in having a SCT! Yes, like Sharon, mine varied from yours but it probably depends on the type of myeloma that we have. It's all becoming a reality now and you know we will be here to spur you on in the same way that you do for others.
Love, Gaye x
Gaye replied to the topic NICE in the forum Treatment 14 years, 7 months ago
Good point Bridget about who decides. With the GPs supposed to be taking over all the cash I have misgivings about their generosity when you think of some GPs. BUT, they will be medical rather than lay people who currently decide so hopefully it will be better. Only time will tell but to give NICE its marching orders is everything it deserves.…[Read more]