[emswParticipant]

Hi Flora22,

I’m so sorry to hear about your Dad. It’s awful beyond words to lose a much loved
parent, particularly in a pandemic. I had a similar experience, losing my mum 3 weeks after diagnosis in January 2022. I had the same questions about why it happened so suddenly, when some people seem live a long time the disease.
My family and I worked with local PALS service who were brilliant and the case has now been referred to the NHS Ombudsman for further investigation. I definitely recommend getting help if you want to look into it further- it’s such a lot to process and cope with.

I hope you are getting some sort of peace about your Dad’s passing and again I’m so sorry that you are going through this.

Emma

[emswParticipant]

Hi,

Thank you so much for your replies – they are very comforting.I’m starting to feel a little bit better about my mum but have become very anxious about my own and my family’s health as a consequence of the experience.

I’m not angry about what happened to my mum but it makes me very sad to think her passing could have been delayed with better treatment.

On a more positive note, my mum had a lovely life and was healthy and very happy up to the last three weeks. I’m very grateful to have had her for the time I did and hope that a cure can be found for myeloma soon.

[Author]

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