Hi Phil

This disease has no normality,so one persons story,has no baring on your,s,my husbands neuts and platelets took a long time to become stable.The thing they look for is,although the neuts dip,they look for a little gain each time,my husbands went down to o.3 when he was taken back in,he is now 6 months on and plates are 84 should be…[Read more]

Hi Sue
If it is any help Sue,Slim had panic attacks when in ITU,and of course I was not there,and I was there 20hrs out of 24.made me feel awful,but he did say to me they were bad dreams,and we did talk about them after he came home.

So glad to hear he is coming home,make time just for you and Michael,you will need all your strength in the…[Read more]

Hi Emma
Glad to hear your mum is feeling better,there is so much to learn when starting treatment,so it is a big learning curve.:-)

When your mum starts treatment everything will be explained,about tablets when to take them and the best times,there are a lot of tablets so go out and buy a pill box,and make a chart makes life easier.

Kidneys…[Read more]

Sorry Debbie
Must have had one of my moments Dad became Mum:-/ :-S 😛 Eve

Hi Jo

I have only just read you post and realised you have started treatment again,So sorry Jo,lets hope by starting early it gets you into remmision early.

Velcade worked for Slim the worse part was going and waiting so long for an injection that lasted seconds.
Good Luck with the treatment Jo,Love Eve

Hi Mavis
I am so pleased for you,lets hope you mobility gets better as you get stronger.Love Eve

Hi Debbie

No one says you cannot drive,to me it just seems reasonably not to drive whilst taking heavy drugs,your mums treatment might only go 4 to 6 cycles,so no reason why she cannot drive the rest of the time.
As for insurance you are supposed to inform them of any changers:-/ but if you cancel your insurance and after a year take it up…[Read more]

Hi Sue
As with Myeloma every person is different when in your situation,and also react differently,You have to do what is best for you.

I have a friend who use to be in the same position,she used to be worried how she would cope with the practical side of nursing,her husband chose to stay at home,he did go to respite,to give her a break,but…[Read more]

Hi Vicky
It will soon be over and Colin will start to recover so fast,it is heavy going,for both of you,I went in to the hospital every day except once when I went to a funeral,the funeral seemed light relieve compared to going in every day,

When Colin comes out the hard work begins,so you must try and rest now.
You soon forget,they do…[Read more]

Hi Trish
That is lovely news,worry always there in the back ground,but say to mm and worry(s-d It),this is your time so enjoy.None of us know what the future brings8-)

We are off to NZ on the 25th of Nov.return New Years Eve,it is exactly 34 months since we have seen one of our grandchildren,the other one flew home with are daughter last…[Read more]

Hi
I have come on to comment because I so admire you fight against Myeloma,here you are three people who have gone through all this treatment and are still in there battling.

I know you all have no choice if you want to live,but its the stamina I suppose I admire,any body reading your posting,and not know much about your treatments,must be…[Read more]

Hi Gill
No it is not suppose to be ok,far from it,its learning to cope with the fact that people,do not know what to say to you,and by saying nothing,in vase they upset you,they do not realise this hurts more.
As you know my daughter lost her child Matty,and she has got to the stage she puts people in colours RED AMBER and GREEN
Green are…[Read more]

Hi Tina

I know I felt the same way about Slim,it seemed like you have had it get on with it,but who is in charge.

It hits you after a length of time in hospital,they do realise this,but I think everyone would agree you will make better progress at home.
I would say follow procedure extra cleaning,fresh towels plus being careful about…[Read more]

Hi Everyone
Well I feel less stressed out just reading these posting,so may be that is the answer come on here and talk about it,because the people who reply are all in the same boat,and if they are not,some time in the future they will be.So we help each other.

David I loved the bit about your grandson,same as one of are grandsons,he wants…[Read more]

Hi Marlene

This is just to say hello and welcome.

I cannot help with your questions,but I am sure someone will come on and give you some answers,may I ask how long was your husbands remission and what arm of the trials he was on.?????est of Luck Eve

Hi Sue
You are right it could have been approached in a different way,people say when you have news that shocks you,you only hear what your mind will accept.So may be no matter which way it was put,it would have had the same effect,

I do not think any one can give a person a time limit,yes they can say,the treatment is no longer working,and no…[Read more]

Hi Sarah

I think Dai is right concerning the chest infections,when henry had the SCT he was given lots of tablets to stop different infections,I am not talking about normal antibiotics,in theory if Henry has been treated with antibiotics plus steroids,his chest should clear up,unless he has damage to his lungs.

You must trust your own…[Read more]

Hi Dai
Do not worry I do not take everything to heart,lol!!:-P

You have managed without knowing it explained a few of the things that have been bothering me for some time.If I may explain.

1 Slim was a commando marine for 24 years.
2 Slim also been a diver for for well over thirty years,professionally for
about 6 years when he…[Read more]

Hi Winston

No not much help,I am more interested about the run up,because I am assured,the bloods,will be the first marker,so how did you get in the position of compression on the spine???,as I said they should have discovered you going out of remission,I have my own reasons for asking,can you help.

Hi Dai
With out taking over Stan and Mary,s thread I would slightly disagree with your figures,If they could only find why some people respond well and others do not,I can honestly say I do not know if Slim will get 6 months or 6 years,and i do not think the experts know either:-P

As for stress,mine was because I found people not doing the job…[Read more]