Hi Dai

Now you know what his hospital is like:-P :'-( >:-(
1 hr to get there and park!!!we are like a piece of the furniture in the waiting room lol,
I watch all these new people starting treatment,and they just do not have a clue how much time they will spend in waiting rooms.
Its not the nurses fault they are just so over whelmed,some of…[Read more]

Hi Jen

Did you ask if your Dad had any tumour,s or lesions!!! this could be the pain,but chemo drugs should stop it,you do not say what pain relief your dad is on!!!or how much weight he has lost.
Slim could not pick up a carry bag with a few items in,
Jen it all takes time,they know if things are working by the blood results,and kappa light…[Read more]

Hi
Well Friday bloods,Monday bloods Tuesday Platelets early hours took Slim to hospital temp39.Kept in Let out Wednesday evening.Good News Neuts 3.5 Platelets 57. Day off today,back Friday for bloods.:-P
Seems he was constipated !!!,thought i was keeping a good eye on that one!!!,I think part of problem is spending so much time at hospital,there…[Read more]

Hi Mari

Go on the holiday,and enjoy it,out of the Myeloma Bubble,between different things Slim and I never managed a holiday,and i truthfully feel a holiday would have been good and relaxed us before it all started.hindsight is a wonderful thing.If we new the future decisions would be easier.8-)

Second SCT you thought you would not be able…[Read more]

Hi Jean

Slims had thrush,I think they put it down to not enough fluid,and with there system taking a beating it,s just one of those things.Slim has tablets at the moment in his SCT pack.
Just got up out of bed,Slims in hospital again,took him in last night,temp up,mainly took him in to check his bloods,They said everything was fine,but kept…[Read more]

Hi Keith

So glad you could enjoy your holiday with out treatment hanging over you.

Would be grateful if you keep us informed of how you get on with treatment as it is nice to know what is in the pipeline and how it is working.
Pinching Toms saying Onward and Upward.Eve

Hi Onlyme
Its harder on you and your family than on your mum,The driver will take away the pain,and your mum is in a state of ease,I do hope by the time your mum is ready to let go,you will be ready to let her go.

I have been wondering how things were with you,but felt that you had enough to cope with,with out answering any post,but do not…[Read more]

Hi Tom
My dog has had his 5 min of fame he was on TV,stardom did not go to his head8-),One in the family is enough:-P.
I do realise these people are young people doing research,but they are suppose to be intelligent,!!!!,Love Eve

Very well put Andy
I feel very much like you,.Eve

Tom
I doubt it very much,
They could do a good documentary on Myeloma,not someone dying of Myeloma.
But that would not get the ratings going as good as a documentary as a person who is going to die of Myeloma,and don,t forget they gave you a time limit to do it in a year LOL:-P
If they did a documentary on all the new and exciting drugs…[Read more]

Good for you Tom and all those people who live with Cancer.
There are some Freaks around LOL.
Still got NZ in are sight,but do not mind a bit of France,in Fact I would settle for any were,Love Eve

Hi Helen
it worked,but you have not said what beach it is or were!!!!
What amazed me about NZ every new turning had beautiful scenery, Would be out there again if we could,ONe of the good things to come Love Eve

I think you would be better putting your posting Off Topic as People on here are living with Cancer,not dying with it!!!!!!:-P

Hi Teresa

How are you coping ,this must be a very hard time for you,are you managing a little free time for yourself!!!!!
I take it you have told all the family the position now,and you and your girls are coming to terms with what is going to happen,but still looking forward,to the birth of your Grandchild.Also the walk down to the botton of…[Read more]

Hi Judd
This is just a welcome to the site,I have read your posting and cannot help you much,Its my husband with Myeloma and he had the usual treatment of CTD then Velcade with DC which is part of Myeloma X1 trials.

May I suggest you get in touch with Ellen the nurse and she might be able to put you in touch with someone who goes to the same…[Read more]

Thank you all
You have eased my mind,and my daughter tells me they will be able to take it out in Canterbury,so no long journey back to Kings.

I was worried about it coming out,as Slim had such a bad time of it going in,he said no way were they going to replace this one if it became infected,:-( It seems his vein thinned out and they had to…[Read more]

Hi Wendy

Well this has got me thinking,!!!
Slims was put in on the 24 April,then my |Grandson passed away,so he came out of hospital and was readmitted on the 13 may,and came out on the 1 of June.

Officially he is under Kings for 100 days but having bloods and platelets at local hospital.
We have been back to kings to see consultant,but…[Read more]

Hi Helen
For your husband it must be great,waking up to a different woman beside him every week:-)Eve
Bald dark grey then blonde LOL
I usually have my hair very short,because I do not like sitting in hair dresses,last time they just were too scared to cut enough off,so now with this wind i look if i have been dragged through a hedge…[Read more]

Hi Helen
Are you going to post a picture,I think you will look good as a blond!!

Slim has lost his Denis Healy eye brows,and still has no hair to shave with,he says it,s coming back as bum fluff!!(I think that,s what he said:-P )

I must admit,looking forward to Slims hair coming back,he has always had a good head of straight hair,but I…[Read more]