Hi Well Friday was an easy day,bloods in the morning then waiting for the call to go back in for platelets.It never came,so rang up,Slims platelets have gone up to 26,still boarder line,but they decided platelets not needed.

Have another appointment on Monday,same again bloods,so we will see what results,that brings.

Can anyone tell me when…[Read more]

Hi Onlyme

As Tom said cat nap it does work,It is hard,and your Dad does not sound if he is coping well,The house can wait,i think you need to take your Dad on that walk with you,he is trying to be brave for all of you,you cannot help your mum much but you can help your Dad,come to terms with what is going on.

It is exhausting,but you will be…[Read more]

Dear Avis
I do admire all these people who go the extra mile,it is so nice the firm you work for is making Myeloma there charity of the year.

I find it takes me all my time just to function and I am just the carer.

I wish you well Avis .Eve

Hi you two
I can only say take the chance you have been given,Slim and I were very unsure,one because his own consultant thought Slim had to much damage to his lungs.So at the end of the day it had to be Slims choice,I would never have forgiven myself if I pushed him,and he died.

He has now had his SCT,and he said it was not as bad as he…[Read more]

Please do not worry about feeling down,this is were you should come when you do,as we all understand and lots of us have been in situations that have been very difficult.
A year last Easter Slim was in ITU,we actually got married in ITU so that in its self explains how bad things were,he still tells everyone I married him when he was full of…[Read more]

That is very sad news for you and your family,I would say you have done the right thing in not telling your mum,but if she starts guessing i would tell her as,she might have things to say,that need to be said.

We tend to try to protect the person that is ill,but sometimes its good to talk about it,as you find out what they would like,I know…[Read more]

Dai
All that sounds like a wonderful heavy day,you must be very proud,as an event like that takes a lot of organisation and lots of hard work.

I wonder how these wonderful people find all the energy to do all these events,my Son in law has just done a support driver for people who cycled to Lands End from Canterbury in aid of Cancer plus…[Read more]

Hi Dee

WE live in Deal kent,it is my husband who has Kappa Light Chain Myeloma,
He is treated at Canterbury,He was diagnosed after many months of pain,and weight loss,that was August 2010,finally diagnosed February 2011 18 months on Myeloma Trials X1 which might be available to your Dad ,he finished Chemo, he has just had a Stem Cell…[Read more]

Hi Dee
I know all this is worrying,and you will continue to worry,but take some deep breaths,and think I can do this,and the calmer you stay,the more help you will be to your Dad.

Right now your Dad has a lot of the symptoms,which are not very nice,the first thing they will do is control the symptoms,stop Dad being sick,and help him regain…[Read more]

Glad to hear mum is feeling better,

When Slim was first taken in to hospital it was with AKF and hypo-calcuimia(spelling) ,within 48 hrs the difference was amazing,
The Kidneys should clear but it,s sensible to make sure your mums fluids is high to help clear any chemo.

As for sunshine its no fun for Slim long sleeves hat and factor 50:-(…[Read more]

Hi Mari Sarah and Min

My Problem Mari is I am deaf so phones are a no no,I hate them,miss a lot of the conversation!!!, so prefer to do face to face,If Slim goes on the phone by the time he has come off,he cannot remember what was said,lol
Would be interested to know how you get on Sarah,I know a few people who actually do counselling,may be…[Read more]

Hi Tim Jo and Sue

Went to hospital today,and Slim had more platelets,the sister said it is normal,and she thinks Slim looks very good after SCT,but he now weighs 62k so all skin and bones.

Going for bloods on Friday instead of tomorrow so will be able to see how far they drop,today before platelets they were 10 and neuts 1.0,he says he knows…[Read more]

Hi Rachael

Lots and lots of fluid,any thing that goes down,Jo use to take the tablets in yoghurt to get them down,the whole illness is a roller coaster ride,with highs and lows,
My advice is get your mum on here and she will see how quickly people respond,and it will help her,because this whole thing can make you very depressed.I hope they…[Read more]

Thank you Helen and Ozzy
For your replies,
When Slim was in hospital at Kings he had 5 units of platelets,Then when he was taken in to Canterbury hospital he was given 3 units of blood and 1 unit of Platelets,He has been out 10 days and had 2 more units of platelets,and we go in this afternoon for another unit.
I asked the consultant in…[Read more]

Hi Ozzy
Getting Myeloma does make you question,how you manage the rest of your life,I think in that respect it is not a bad thing as you value things more.

Ozzy if I am correct everyone has a certain amount of these cells in the bone marrow its when it goes above 5 it becomes an issue might be worth ringing Ellen,to confirm.!!!!

Have a good…[Read more]

Hi Sarah
Sorry I cannot help you with the rash,Henry does sound if he is over doing it a bit,but that,s what men do,the desire to be back to normal is strong,Slim is the same.I do not know if this is any help to you,but Slim has used a product called POLYTAR from boots,its for people who have trouble with skin,I also rub him down with coco butter…[Read more]

Hi Siobhan

My name is Eve,I left a massage for you on your mums facebook page,I kept looking out for your mum posting,because no matter how ill she felt she would always take time to reply to new posting.

She was a special lady and will be missed,as you say she is now out of so much pain,I am so glad her passing was peaceful,and hope all the…[Read more]

Hi Rachael

Its such a shock to the system, In many way,s your just glad you no what it is,we have all been there,if you keep reading the back post I am sure you will find lots of answers to you questions.

Only advice I can give you write you questions down before you see consultant,They see this thing every day and are so used to it,they…[Read more]

Hi Jane

You will have to go out and buy yourself a big floppy hat and factor 50 sun cream,lol. My brother who lives on the Wirral told me you actually had some sunshine the other,but you know what these scousers are like,all talk.:-)

Slims eating better,so he has a little bit more energy,its hard work for him as he has no taste buds left,so…[Read more]