Hi Tracey

I am sitting here this morning,and the sun is coming up I have tears in my eyes,and truthfully I do not know why,I do not know if its because I read your post,and thought,poor girl or if I was just seeing myself a little bit further down the line.So it must be me just being a bit tearful.have to find my little white pills again,they…[Read more]

Hi David
You know what they say "love is blind" LOL Eve

Hi Teresa

My thought are with you,do not bother replying individually unless it helps you,we all have some idea what you are going through at this time.

This is a very sad time for you and your family,enjoy ever day as much as you can,and any time you feel like unburdening yourself,if you do not want to do it through the site,lots of us have…[Read more]

Hi Jean
It looks if hubby has a bit of man flue bugs,if you feel worried about them before having a good holiday,for your own peace of mind,go to the doctor,s

Jean if you have an infection your pp go hay wire,
I would press for an early scan,I still find it hard to understand why a PET scan in not used in Myeloma,that shows any activity…[Read more]

Hi Carol
Were have you been??? not heard from you for awhile .Hope it was sunny were ever you were.8-)

Hi Mari
Have nothing to add about Velcade.
Did Steve only get enough stem cells for one chance,from what I can see for allo SCT,you would have to convince them its viable.They like a back to back ,your own sc then a few months later a donor .Eve

Helen
You just go and have a wonderful time,if you have not seen your sister for a long time you are going to find it very emotional too.Love Eve

Hi Helen
Looking at Elaine,s reply,I cannot help but think she has it just about right,we would all like to think that people will get a good run of collecting there pension,but it does not work that way.!!
As for the fact they are more concerned about your blue badge,well every company has to fill there disabled quota,you will then tick one of…[Read more]

Hi Michele
How are things going,did your husband make any decisions concerning whether to go for SCT??
How are things going in general.Eve

Hi Andy
I have the same problem,and I am not the patient,cannot blame the Dex:-P
Wake up, and just cannot get back to sleep,usually play scrabble with my daughter in NZ but she is not always available as its 3pm over there.

How did the visit to the hospital go,??? Eve

Hi Tom
Thanks for info,do not have a kindle but do have an i pad ,so will look on there.
Good to see you are doing well,try not to worry about smm.why worry about it if you cannot do any thing about it,Ask for an I pad for next Christmas they are amazing. Love Eve

Hi Wendy
I thought the Myeloma X1 trials were world wide with all data being combined and results published world wide,to come up with results that will eventually be accepted as given results of CTD against RCD.May be I am wrong.Eve

Hi Teresa
I had problems posting that picture,I tried one of Slim and me sitting together,and just got his ear and mine,resorted to dog as only picture i could fit in,there are instructions on how to do it at the start,the web team will help you,you can contact them by E Mail,or someone reading this might come on board with a solution.
I get…[Read more]

Hi Andy
my local hospital is Canterbury which is 15 miles away,but the nearest hospital for SCT is kings in London. That is were the problem lies for most people on the SE Coast,but as I said my daughter lives nr Sevenoaks,so Camping on her drive,I wonder how much she will charge me:-/

I do not know if its any help,Slim had low potassium ,and…[Read more]

Hi Lynda

Good to hear things are OK with Pete,I think we all feel the same,just want a result and an ending,but it is early days for Pete.

I know he will have to go the hospital more,but if it works!!!!is Pete having sub cut or infusion???,Slim had to go,for blood test morning then infusion afternoon,the actual injection takes all of 3…[Read more]

Hi Jo
Do not know Skaithos is it mainland or a Greek island,only been to the mainland once,we have always said we would do Cyprus with Motor Home,alas one of the many things on are list:-(
Just so pleased for you,after the scare of you might be needing treatment again,make the most of it.8-)Love Eve

Hi Tony
My husband Slim is on the Myeloma X1, he got the CTD side,because of his fitness he was on the intensive pathway.
I can only tell you to listen to your body,if you do not feel well, do not think you can cope with it,make sure you phone the hospital for advice,its a very hard call and you do not want to bother anyone,but it is very…[Read more]

Hi Dai

We bought are first van an old vw,because we had two old smelly jack russels, and having a guest house myself,did not fancy staying in one.First major trip was 6 weeks to Spain,wish we had done 3 months,that must be over 20 years ago. We now have a Concorde Charisma,will be living in it,when Slims in hospital for a month.
Have been to…[Read more]

Dai

We know there is not any choice,
One because at the start no one tells you your options,it is only after a sharp learning curve,it becomes apparent there just might have been better options,but when the word Cancer is mentioned ,with no cure,your just grateful for any treatment.:-/

Most of the European Countries start on Velcade,Looking…[Read more]

Hi Jo
Must admit would give a lot,just to be in a warm place in the Motor Home,but have been told no travelling abroad for 6 months, as they are spending so much money trying to help Slim,I feel we must obey there rules.

Have you any nice trips planned??
Lets just hope that England has a glorious summer,just this second had a small hail stone…[Read more]