Hi Jorge
You are correct,not bad going for a man who considers he is old at 66 years LOL.Eve

Hi Andy
53 is young enough to consider a back to back SCT,So in some ways you are a lucky guy,it is surppose to be very effective at keeping the dreaded MM at bay.I mean lucky in MM and age terms if that makes sense.
Not many people go through 3 treatments in such a short time,at this rate,you will be having SCT in no time.I think why they like…[Read more]

Hi Dai
I can only comment on Zometa,and reading up on it,as Mavis says it,s suppose to help with Myeloma,although I have to say a dentist told us,it is more effective in the first few months!!!:-P
I am not like you Dai,I know I should have confidence in the experts,but it,s not there life,and there views differ so much,,so I will go on…[Read more]

Hi Mari
The long post just makes up for you not posting for awhile:-)

We all have are ups and downs on this rocky journey,some times I feel only the world of myeloma exsit,and then I have to remind myself there are lots of people struggling with different things,so I tell myself to snap out of it and be grateful.(:-) 🙂 🙂 smiley face comes…[Read more]

Hi Jo and Mavis
|Glad to hear,the new Cancer Centre at UCH is good,as both of you say,so much time spent in hospitals!!!
Mavis also glad to see you have escaped,must feel great to be home,the summer will not be long coming,and should help to get you back on your pins.
SS Bradford have come up to scratch,nice to see someone pulling out all the…[Read more]

Hi mari

Last we heard,Stephen was going on Velcade I do not know if I have missed any post,but did the Velcade work,it has worked for Slim and he goes for SCTend of month. If I am correct Stephen did not get a lot of remission last time.!!!!

Hope things are good with you both.Eve

Hi Jorge
Nice to here from you old man,if I called my hubby that he would read me the riot act. LOL
You seem to have God in your life ,so may be he is the only carer you need,you seem to be doing very well on it.Do not right yourself off to soon,people are getting past a 10 year remission and with new drugs in the pipe line,you might live to be…[Read more]

Hi Teresa
Yes Slim goes 23 of this month,after a year on treatment,and septic pneumonia in the middle,been a hard slog to get here.|They say he is fit enough,and he can not be any worst than when he was in ITU for 9 Days and 11 days in general ward,with months after recovering while on treatment.

They will keep him in for at least4 weeks,and…[Read more]

Hi Helen
🙁 I do envy you I know its wrong but it will be at least 7 months from now before we can go out,to the land of the long white cloud,It will be 3 years I have not seen 2 of my grandchildren and when there young they grow up so fast
We talk on Skype,and have kisses and hugs,my computer has never had such affection before.:-)

Helen…[Read more]

Hi Ted
How are you doing its a long time since I have seen post from you,one minute you are going on holiday,then no Ted about.:-)

I hope you remain in smouldering for many years,Love Eve

Hi Helen

My mind is just trying to get round the fact that your Dad must have been a older Dad with a young heart,if your the eldest 🙂

I can see were you are coming from ,specially when you finish chemo and you do not have to go to the hospital as much,you become normal and no one wishes to go backward,but if you were the carer!!!.
Think…[Read more]

Thanks Jet
have been reading up on this for a few weeks sounds very promising,talking about world trials.

Slims managed to get to SCT stage after CTD then Velcade so fingers crossed.
Going to Kings 23 April told 4 to 6 weeks in hospital.

Good luck for the future with your Allo SCT.Eve

Hi Jet
Sorry cannot get the link,are you talking about this new one just coming out of Israel!!!
Cannot get the Dailmail link.
How is life treating you !! Eve

Hi Dai
I agree with Janet,none of us knows what is round the corner,on a practical basis,we have tried to sought out our lives so that no one has that burden,but must admit it is now with the knowledge that Slim has MM,.

As for loving someone,I feel love can be painful,but would we be without it,I do feel everything has been worth the last 30…[Read more]

Hi Stephen

I could not reply to you E mail as you do not have an email address on your profile,but thank you for sending me a reply .

Stephen you will not get any quick relieve,everyday you will wake up,and be aware that Dawn is not there.
Min who lost her husband,found by making her world a bit bigger the pain was the same,but easier to…[Read more]

Hi Teresa

Well like Dai, Peter,s pain has been resolved,and as usual the carers have to stand watch and worry,it,s a place we have all been in,you have to ask yourself who you are angry with,the hospital or the hubby.Mine was both,for not taking on board my view.You are the one that shares this burden,sleepless nights,worring that they do too…[Read more]

Hi Dai

I tend to think its the not knowing with all the anxiety and the inner knowledge,that even though you have MM,you know in yourself that something is not right,but when the experts say your ok,doubting Thomas comes in.
I have to ask what would a X ray have cost 9 weeks ago!!!!.Even if they thought you were wrong,what about your peace of…[Read more]

Hi Helen

I thought every employer had a duty of care,so one can only assume,they are looking to see if your fit or may be a big fat pension.I suppose it depends what your job was and how long you have been off.

I know someone on here worked for the NHS although she returned to work,her general treatment seemed so unfair.i think a few on here…[Read more]

Hi Everyone

I put IMMUCINE vaccine and got all the gen from the net,it does sound promising, they were talking about it going on world trials,so uk may be in with a chance.At the moment it is on trial 3,in the main hospital.

Lets hope there is a good response love Eve

Hi Bridget
I come out with things all the time,and my kids think I am daft as a brush,I put it down to me being a Liverpudlian ,and my children are Southeners.

They do say I am sounding more like my late mother every day,having three girls I get the last laugh as slowly they are all sounding like me,specially my oldest Ruth who has two…[Read more]