Hi Gina and sister
Lovely to hear from you,and to see you are moving on with your lives,that,s what your mum would have wanted,lets hope this less crying days as as this is also what your mum would want.
I think you feel it more on days like mothers Day and birthdays,the knowledge you can no longer pick up the phone and have a chat.

As you…[Read more]

Hi Stephen

My heart goes out to you,mainly selfish because I know one day I am going to be in the same position as you,I hope that does not seem unkind,why has it taken you so long to find this site,people on hear understand exactly what you are going through,some have already been there,and others are preparing themselves,but hoping there is a…[Read more]

Hi Ian

Swollen ankles,sounds like water retention ,Slims ankles became very swollen on Velcade,had to buy socks with loose fitting at the top.only just managed to fit into his boots,I use to massage his feet and legs which gave him some relieve.
He did not have PN until he finished Velcade,he only has it sometime,s I think it is just a…[Read more]

Hi Teresa

I would say lots of deep breaths are needed,you do not say if you have any support from children or friends,this is a time for some help.even if you can just have a few hours break ,to recharge your batteries.If you just need to chat come on here,someone will all ways reply:-)

Lets hope for some new treatment soon.Love Eve

Hi Dai

I think you have said what a lot of people feel,you see so many people coming on here for advise help or just to explain how they feel,some never to be heard from again,and some just can not cope with the whole process,and as we have both said some who cope for years and then just post. I would not pretend to know why they post and we…[Read more]

Yes I agree Dai

Slim never had pn when on Chemo ,but he has it now,people have recommended drinking a glass of milk,plus another thing from boots coco ??????,if the gentleman who recommended it is looking in.I would be grateful for the name again.he said it helps him.

Dai I think its because it,s an anti depressant,Slim was of the same…[Read more]

Hi Neelie

Well I thought my husband was treated badly by his doctor,but I think your dad,s case beats it.the surgery will now bed over backwards and everything will be by the book from now on,you will have to take my word for that.I was lucky I found a young Canadian gp in the practice that listened to me.She is now are designated doctor,plus I…[Read more]

Hi Gill
It does come home to you when you realise children are fighting Cancers as well,My daughter spends an awful lot of time in different hospitals,in and around London,the conditions for care for very sick children needs improving plus it get worst the older you get 14 to 18 year olds are treated on a childrens ward or adult wards. They…[Read more]

Hi Susie
Welcome to the site,by the sounds of it,you are going to find more information from here,than your own doctor told you,did you doctor mention the word Myeloma??????
If you went to the hospital,without any knowledge,it must have felt like a boxers punch knock out!!!!!,its a wonder you managed to take any thing in.

Susie there is a…[Read more]

Hi Dai
As you can see,its early hours of the morning,enjoying a cuppa and watching a program on the Royal Navy,in ST Lucia,if Slims awake so am I:-P

I do not know if this will be of any help,but Slim takes a mild ant depression Amitriptyline 10 mg,it worked wonders for him for a few months,then he had high dose Cyclophosphamide prep for…[Read more]

Hi Everyone
Slim had not had a drink for 17 months as it all taste awful and he was a drinking man,tried on a number of occasions but no go.

Then he tried some port with his cheese and biscuits,loved it.Now an occasional white wine,but still does not like his bitter any more or red wine so all the more for me. lol Eve

Thanks Eliza

I have one,but I would like to know how you do the picture bit on here the smiley face was great and now the gadget????Love Eve

Hi Everyone
Nice to see you all in a good spirited mood on this beautiful day 1 st of April,it always gives me the feeling that spring is here although its a bit cold outside.Should be a glorious month for the spring flowers.
Hi Jo nice to hear from you,have you been off on holidays again!! will not be long before Helen,s off to NZ should be…[Read more]

Thanks Tom Eliz and Dai
It did take 2 days Tom as the first bloods came in at only 19%,the man next to Slim came in with88%,the first day they got 1.9,so Slim injected him self at 7pm and 7am,that seem to do the trick.4.02 overall .They rang up the same night each time to let us know.which I though was very thoughtful of them.

I have been…[Read more]

Hi David

All good news,must admit was getting a bit worried as you seem to be putting your house in order,I suppose this Myeloma lives with us all the time,and its presents is felt when the time comes to see the consultants.!!!

So what have you planned another cruise,or just a good summer in good old blighty.???
What ever is just enjoy.love Eve

Hi Steph

Welcome as a carer you will have different concerns so i hope this site gives you some in sight,any time your worried or just need a bit of a boost it is worth coming on,so do not be a stranger,this myeloma affects people in different ways this is why they say its such an individual illness.

It is hard at first because you are…[Read more]

Hi Mavis
The things you do,to land your self in hospital,I hope they are waiting on you hand and foot,LOL only joking it,s a scary time for you,but the good news no compression on the spine,that must be a huge relief for you,you are in the best place as the main thing is to get you a good pain relieve,plus get you on your pins.

It amazes me…[Read more]

Hi Andy
Sorry to here your news,this just might be some help to you!!!!

In the under fifty ,s there is a chap called Mike Barker who,if i am correct has SCT when his PP were high,again if i read about it correctly,he decided with his consultant to go ahead with SCT.
It might be worth checking his post!!! I do not think he has posted for some…[Read more]

Hi Teresa
It never ceases to amaze me how many carers cope for years,on there own,not just people who are away from their family,people who just seem to manage on there own.

I am not one of them,I found this forum last year and must admit if I have any doubt or do not feel things are going the way they should,I tend to come on here and gets…[Read more]