Hi Dai
Merry Christmas and here,s to a good new year,this Christmas I was thinking it must be better than last year when Slim was so ill,well it was a bit better,Slim managed to eat half his dinner and was falling a sleep at the table,grand kids thought it was hilarious ,after tip toeing around him for a hour decided to take him home,boxing day…[Read more]

Hi Linda

Welcome,you are not alone and we have all felt exactly what your feelings are at this moment,even the guilt,wishing you had made hubby go to the doctors months before,looking for a reason why this myeloma started wondering about what the future holds and how an earth are you going to cope.

Treatment a bit mind blowing,we use to…[Read more]

Happy Birthday Dia,
many more of them,simply pleasures are the best,so glad your Janet and you are enjoying them.
take care love Eve and Slim.

Hi Sarah
Banks are there just to squeeze as much money out of you as they can.!!!!

If its any help in the future Sarah,we had an awful lot of problems with Slims mum,s banks,and had to go to the court of protection which in it,s self is a robbing legal organisation,but because of the problems we had,we decided that we had to make plans if…[Read more]

Hi Mari
Dex for Christmas,at the least Steve should have a good appetite,and be on a bit of a high,a little bit more energy and less sleeping,that,s what I call a Christmas present from the nhs.

Hope the Velcade works for Steve,it seems to have worked for Slim,he has started on a tablet to help him sleep at night,sorry we did not do it earlier…[Read more]

Hi Everyone
My Christmas wishes to you all,plus the team behind this site in Myeloma UK.

Today my main thoughts are to the people who have stopped posting for what ever reason,you might have left us,but your not forgotten,and to all the people who look in to this site but never post,remember you have something to give,and that,s your…[Read more]

Hi Everyone
Yes I can accept some forgetfulness is age related,sorry boys and girls it,s the Chemo,we have lists for every thing you could imagine,and if things are not in hand reaching distance,they are never found again,stands up two steps,then cannot remember why he got up,good job he has not lost his sense of humour,we can at least have a…[Read more]

This is the week I dread before Christmas,shopping done even went to France for some goodies most Christmas presents bought,trying my best to keep away from the shops,because I know I will not be able to resist the so called Christmas bargains,I am a sucker for a bargain,and we all know the previous price was inflated.It is all a mind game,and I…[Read more]

Hi Everyone
I have already bought mine could not tell you if they are eco friendly ,Mine will be set of on a sea shore,and don,t worry already thought of coast guard,I use to work for them years ago as a voluntary coastguard,

Christmas night seems ideal, to remember people we have loved and lost,and raise a glass,and be grateful that we have…[Read more]

Hi Jean
Just seen and read your post,sorry Franks going through a bad time.
I wonder how the doctor can say a crushed vertebrae is nothing to do with Myeloma,a lot of people including Slim started with a crushed or cracked vertebrae!!!!!!!
Hope he has some strong pain relieve to get him through Christmas and Wedding,it,s a bit of a bummer for…[Read more]

Hi Craig and Etta

Glad to see you have got home,as Tom said enjoy that bed,wish Slim had one,he sleeps in his chair more than his bed,says his legs feel far more comfortable in chair.:-)

Just being home is going to lift Etta,nothing worst than hospitals to make you feel depressed,looking back Slim had a phase of anxiety,it will pass:-)
If…[Read more]

I think that person explained it so well,some one once told me never refuse an invite or opportunity,keep opening the doors in front of you,your past will always follow you through the door.
I have a friend who,s husband is planning his funeral,I have known him for 30 years,he knows he has not got a lot of time,and I have found out,so much in one…[Read more]

Hi Mari
How is Steve getting on with the Velcade!!!!!!!

Hi Tom
It is the tooth Tom,lol
If he had his way,it would be straight forward job,see dentist,don,t bother with injection,tooth out.lol:-0
I am the coward in the family:-(
When we listed the drugs and complications like his lungs,for the dentist,It surprised me how much there was to be written down,I could not equate it to Slim because he is…[Read more]

Hi Gary
Forgot to mention,have you looked in related conditions,there is a few younger people on there who have gone through the same thing as your sister,
Eve

Hi Craig
This is were you have to be strong,when Slim was in ITU,he was saying and seeing all sought of things,does not remember anything,In fact a lot of his short term memory has gone,but that,s not important,he is still here,and although not his old self,I am grateful.
Low blood pressure is my first marker with Slim,even before other symptoms…[Read more]

Hi All
Well if there is a link Slims must be from his Slavakien side,and we have no history there.
I do not know if I am bitter,but Slims mum died last year age 84,she was not a very nice person,so it does seem a little unfair,but that sums up life sometimes.
I know we worry about our partners David, managing, worrying about what the future…[Read more]

Hi Terry
Yes they are the same thing,I use that reference,as to me it is a biopsy because it looks at cells in the bone marrow,and it is the one test they can confirm myeloma and the only way of telling what is going on inside the bones.
I agree failure is not an option,it,s important to be positive.Eve

Hi David
I think everyone judges there own life span on there parents,Slim and I were talking about it today,I said after the initial shock of being told you have Cancer,you become more acceptant,Slim answer was,he was the one with Cancer not me,and he never looked at it as a shock,his father was a soldier who died in the 2WW age 28,and Slim was…[Read more]