Hi David and all these lovely people replying
To David and everyone else I am sorry for your loss,when it comes so close to home it hits harder,It seems cancer becomes so much more to the front when it enters your world,you notice how many people have it.

I have lost close relatives and good friends ,some very young,these people fought hard to…[Read more]

Hi Sarah
Good to hear from you,no sign of the Ram!!!!!!
what you say is so true,Gordon loved his land and was privileged to die on it,and you have the comfort of your family around you.I consider grand kids your greatest asset,the future generation for the land you love so well,so his memory will always be there,you just have to decide were your…[Read more]

Hi Jo
I was thinking about you today,so sorry Jo you have been doing so well,Velcade has worked well for Slim,and they have caught you early,Let hope the BMB shows low results,I can only say its knocked Slims from 80% to 10% in bone marrow,that,s after 4 cycles twice a week,with no heavy side effects.
Ask away Jo,if we can help you we…[Read more]

Hi Dave
Tom said it you have been through the wars,and with the determination to walk again,I would say you are doing great,its a big thing,my hubby was lucky he had no compression of the spine,but a fair amount of bone damage.
if you have a look at under fifties there is someone on there who has eye problems ,I think that,s how Myeloma was…[Read more]

Hi Helen,
I felt the same way as you when Slim was in hospital and thought wait until he came home,but I was so busy,bathing and looking after him day and night,the complaint never got done,and my verbal complaint never was dealt with,he will never go on that particular ward again,and now I stand my ground I take the view I know when he is…[Read more]

Hi Gill
Well at least you are getting there,I know you said there was a good local doctor,who new about Myeloma,so that must be helpful if any thing goes wrong!!
How will travelling affect being on RCD????

We did have a week in Canterbury site as we had so many hospital appointments between us,it was cheaper and easier than travelling for…[Read more]

Thanks again for all your wishers,yes I did over do it a teeny bit!!!,i had Slims share as he does not enjoy a drink!!!.
He over did it by not resting enough,found all this energy,and paid the price on Sunday after the walk,has been sleeping most of the day and night,making up for not sleeping well on Velcade.
2 week of 5 cycle this week.
On…[Read more]

Hi Gill
RCD is the other side of myeloma X1 trials,Slim got CDT side,but we wanted the RCD,if that makes sense !!!
This is the one JET had and had such good results.As you know people are affected in different ways,but they can alter the dose,It looks if it will become one of the front line drugs for MYeloma but at the moment still a trial…[Read more]

Hi Roz
You are coming up to your own 1 year soon!!,so my thoughts are with you,I have to confess when people say it gets easier!! I have my doubts the loss just becomes more acceptable,but it,s always there,but in time the good memories remain.
I hope you have planned to do something,even if it just opening a bottle of wine and enjoying that…[Read more]

Hi Everybody
I am on a bit of a high at the moment,slept well for the first time in ages.mind you G&T wine an d baileys helped.LOL but feel wonderful this morning and its such a lovely day the sun shining,and everyone seem to be out walking this morning.8-)
Min you were right about not giving up,and with out your support,i think i might…[Read more]

Hi Dad and Abi
Welcome to the site,It is no use telling you not to worry because your world has just been invaded by Myeloma,and your thinking this cannot be happening to your dad.
There is so much to take in,so just try to take it one day at a time,I found it useful to ask friends and relatives to stop phoning all the time,because I was just…[Read more]

Well Dia
Are you doing as you should and listening to your body!!!:-P

Bridget what is it with kids,that its always mums fault,I could write a book about all the things I am responsible for,even to them marrying men over 6ft!!.It seems because I married a small man,they have hated not being taller so I am to blame, LOL.:-S
Any way it,s…[Read more]

Hi Bridget
Good to see you posting,and glad to hear not many side effects from Bendamustine.Sue,s husband who is on it,is not bringing PP down,but again not going up.
As for the apology about inhalers I do not expect one,this is what this site is about information and discussion and we women can talk talk and talk.Eve

Hello Roz
The inhalers work,and you pay a price if you forget to use them!!,When i first started using them,many years ago, I fought it like h e l l big mistake realised it is very much a preventive medication.
My daughter blames me for all her ailments!! even to the point of having big breast,to drip gravy down.LOL. The woe,s of being a mum. love Eve

Hi Bridget
I have purple and blue one,s
Purple as soon as I get up and last thing of a night preventive
Blue to use any time,but if you use it before a walk or before going up hill,or any time before you do any movement it works far better than,when your chest restricts or a coughing fit starts.
If I forget I pay a price.So I am extra…[Read more]

Hi Dai
Inhalers are preventive,use them before you need them!!!!
I did not reply to your post about the conference,sounds silly but I was angry with you for not looking after yourself FIRST,then I felt guilty because I was the one pushing you!!!! I should have realised you only a male and like most male species do not know when to stop .LOL:-P…[Read more]

Hi Pauline
Good for you,I am a great believer,in what ever you want to do,mine just happens to be camper vans,you could not explain to anyone the kick you get out of it.Have had campers for over 18 years,travelled as far as the Sahara Dessert just wish we had done more,but feel ever so lucky,we did not wait until Slim was 65 as MM took over are…[Read more]

Oh Gill

Do not talk about dentist,Monday spent in hospital to have a tooth removed had to have it done but that was the SITUATION.
Taking pain killers,such a coward I am.

ION

Hi Is it Glynis or Joyce
I know i have asked you before,but lost track of who you were, having no picture and so many new people coming on site,I get mixed up,but i know how difficult I found it to post a picture,could not get the picture right size,and thought at my age,a close up is a no no,so settled for my dog lol.

Thanks for posting…[Read more]