Well said Mavis I agree,Eve

Hi Roz
Sorry if i got it wrong,I know how hard it can be to live alone,specially at weekends,the door shuts on friday and thats it till Monday .
I am not very good at explaining myself,I myself have my own isolation,because I am deaf,I am suppose to were hearing aids,but I hate them,so it,s not so much physical as mental isolation that I was…[Read more]

HI Etta
Mind blowing,but do not worry you are not alone,Slim my husband did 6 cycles of ctd and there are lots more people on this site just like you.
Love Eve

Hi Gill
No not that good looking LOL:-P
Tried reducing pictures but not having much luck,eldest daughter tried,she could not do it.
But at least i have managed to get a photo up,no way am I going to put one up of me that close up LOL,its bad enough looking in the mirror.:-D
Love Eve

Hi Dai
here,s to today a new day,and Velcade 7,good luck.
Love Eve

Hi Mike
In full agreement with you,think its very important for MM people with no siblings,but were do you start,even I do not know the basic and I try to keep myself well informed.
So the people without MM it must not even cross there minds.
Would take Myeloma UK to start information on this one.Regard Eve

Hi David
Wonderful news,I hope you have a couple of holidays planned,and enjoy this new found freedom,no visit to hospital until end of year that in it,s self would have me dancing . love Eve

Hi Etta
Welcome to the site,and to your journey,one that no one wants to be on,but we are,Yes it is all a bit mind blowing,so much to take in and learn it will get easier as time goes on,treat it like a big learn ing curve, any questions ask away,

You do not say what chemo you are on,and it can effect you!!
You should have some sickness pills…[Read more]

Hi Terry
All the chemo differ in how you take it right across the country except if you are a part of a trial,Slim is on Myeloma M1 trials.So it is closely monited and you basically cannot divert treatment.so now on CVD.

Peter had a course of Velcade and then 3 years remission and still going strong.
Slim is doing full 8cycles as light chain…[Read more]

Hi Roz
I have only just seen this post,and as you know I am not in your position,so in truth cannot begin to understand,loosing my partner through death,although i do know that this will happen in the future.:-( I always thought it was that I would go first.because Slim until now was the healthy one with good genes,just shows how wrong one can…[Read more]

Hi min
Who,s ears?if big Slims if small mine,having trouble reducing size of photo,tried putting one of Slim and me on,so thats the ears and fence LOL,my dog is better looking.Love Eve

Hi Terry
First may i give you a welcome to this site,I am a carer to my husband but you will find lots of different people on here who can give you advice and boost you up when you need it.
I can only tell you about Velcade but others on here have been on a journey with similar problems,
may I say Velcade is not the last resort,My husband was…[Read more]

Hi Shirl
Just seen your post ,do not know how I missed it.
Well stuck in hospital with the weather so lovely out side,no fun and tired up to oxygen ,you don,t have one of those massive tanks do you,or can you get about with a portable one?
I take it the info day was at your own hospital?
anyway at least your home now,this weather is going to…[Read more]

My word is

QUESTIONABLY

Leaving BLY

To me this is what life is about at the moment:-) Eve

Hi Min
Lovely to hear you are posting again,so worried for you at one time,knowing daughter lived away and son at sea.
I have thought about starting a support group,but it would not be practical for me personally.For a start no way would Slim go!!:-P,Have been trying to get him to go to London,but no go!!!!!
He is a very self contained…[Read more]

Hi Peter
Thanks for replying,its just interesting the different ways Velcade is given,and with different drug combinations,and how effective it is on different MM,:-S
You are the first person I have heard from who was on Velcade and 3 years on is alive and kicking,half the problem is I am 80 miles away from a support group and this is a life…[Read more]

Hi Ellen
I have been posting on here since February this year,and found some thing I believed did not exist(cyber friends),so yes I mourn their loss,it also brings it home,this is going to happen to me.:-(
I would have loved my husband to have sailed through this horribly treatment,and come out the other side,like Jet,who only wants positive…[Read more]

HI Min
So glad you are coming back to us,and so glad you have taken that first step,from reading your mail,I think you are a very strong person,and for awhile you worried me wondering if you could get through that black tunnel and see some light at the end:-),Grand kids,are a tonic,just what you need.

As for cars cannot help you,me personally…[Read more]

Hello Peter
Welcome to the site I hope you enjoy your your journey here,finding out new information and any help you need or can give:-)
How do you rate Velcade,how long were you on it,and did you have any side effects?????
Where you on trials? and what dosage did you have.It sounds so interesting.
I would be grateful for any info as my…[Read more]