Tom
We are lost with out you. eve

Hi
How about

DOMINATRIX

Is that a swear word or a sex word,better watch my knuckles
Slim tells me its a bossy word,

RIX

Hi Bridget
What surprises me Bridget is the turn round of what we were told when we saw consultant,I checked about bone marrow every cycle twice,then yesterday same nurse,said in a few months,that,s why i want it checked out.8cycles,3weeks cycle equals 6 months of treatment,Slims just done 6 months on CDT.
I need to know is this the same for…[Read more]

Hi Sharon
Slim seems to be in the same situation as you,blood and urine are showing him going in to plateau ,but showing 80% in bones,on 2 cycle of Velcade,went to hospital yesterday,things have changed again,nurse now says will not do bone marrow until near end of cycle!!!.I asked how are they going to check how disease is progressing???? as it…[Read more]

Hi Sarah

It doesn,t just rain it pours as the saying goes,and its raining on you,put that brolly up and protect yourself,you don,t want to catch anything,!!!!

Ask yourself why your MIL is phoning you and not Gordon,s siblings the reason being she feels she can relate to you,and because she see,s you as a strong person who is coping so…[Read more]

Hi Tom
Must admit you do seem well looked after:-)I think Slims consultant takes one look at me,and thinks she,s going to start asking questions:-P
Went to hospital today,bloods and treatment ,arrived 9 oclock bloods,1 0clock for treatment Slim had treatment at 3.30,left 4 oclock.in all treatment is 30 min top.with travelling 9 hours…[Read more]

Hi Min
Just come on to tell you,that you will be in my thoughts tomorrow,I hope you have a good celebration of Peter,s life,It is going to be hard for you,as you had no time to prepare yourself,IF Peter had to die in hospital ,Icould not think of a better place to die,I think ITU staff are wonderful people,different from the general wards.

We…[Read more]

Hi Bridget
Have to say Bridget how much i admire you,good job its not me who has this illness I am a coward when it comes to pain.
Wishing you well for tomorrow.Eve

Hi Alison

Welcome to the site,Good to know you have plateaued,and are back at work ,my husband started treatment in February,CDT,but has had to start Velcade.
SCT is not recommended by his consultant,because of damage to lungs.we do not have that option to decide yet.:-(

There are a few people on here who have chosen not to have…[Read more]

Hi
I often wonder how many people die with it not being diagnosed,if you think the average age is 70,do doctors bother to even,go along the myeloma route???

Young people seem to be getting picked up earlier while older people,have usually broken bones by then.
so is the numbers higher than3000 a year in uk who get this disease???

On…[Read more]

Gill
I got a message from the web team and I nearly never came on this sit again,so formal ,no flower powering at all they told me they considered that my language was in appropriate ,and I do not swear?????The word I used was b-l-o-o-d-y,Since then if you go to put a word in they consider unsuitable it comes up in red,!!! thank god Tom taught me…[Read more]

hI EVERYBODY
It must be me,do I detect that men do not just take these poisons tablets,and say well doctors know best!!!!!!!!
If we do not take an active part in this illness why should anybody else bother!!!
I know I live with one!!
Sorry but we have to work together,I would like to see more co-operation between the medical profession and the…[Read more]

Hi everyone
How about

NOISINESS
Leaving NESS

Hi
How about a nice easy one

YELLOW
Love Eve low

Hi Jean
I use it all the time,If your unsure of anything there is a good library site,on here.
When this first started I was told Slim had MYeloma,and it was not compromising the cord,and that was it.Everything else I had to ask about,but when you are told new things your are in shock.Since then I have used this site and libraries to find out…[Read more]

Hi John
Slim has the same problem,he is also on Velcade to,I have suggested a picc line but they are worried about infections.
What I do is try to get him drinking a lot before blood test,and I have bought a hot water bottle which I fill at home,and rap it up in a pillowcase,which is applied to his arm all the way to the hospital,it seem to have…[Read more]

Hi Jean
There is a book called Myeloma your essential guide.
It is excellent,you can read it in little bits to take it all in Myeloma UK should be able to send you one,I got mine from the hospital along with other books about cancer.
If you ask for results of test and use the book it helps you understand them,plus it helps to know when bloods…[Read more]

Hi Ivan
how is your leg doing?????
Eve

Hi
Mine is YOUTH

Leaving UTH

best wishers Eve

Hi All
Sharon what are you on now.
It does not look if Slim will be given the option of SCT,because of lung damage with septic pneumonia,after doing 6 cycles of cdt and finding it has increased in the bone marrow to 80%,I have to wonder if trials are the right way to go?,they measured the success bench marker in free light chains,which actually…[Read more]