Hi Sharon
Must admit I search for everything concerning this disease,you just live in hope ,that there is something out there,that will work,and actually cure Myeloma.

I think the answer lies treating it why it is still contained in the marrow.
They are talking about 10 years research for Ecstasy.I also think some Myeloma,s are easier to…[Read more]

Hi Sally
Good to know your dads feeling a little bit more cheerful,it is a shock to the system when you are first told,and there is so much to take in.

Slim found it easier to do a big chart with the cycle on,easier to keep track of the pills,he kept 2 pill boxers one for hospital pills and one for own doctors pills.
I think you will have to…[Read more]

Hi
Just asked the brains
SEXILY
Now you can tell it was Slim who thought of that one!!!!!

ILY

Dear Min

I have just gone back to your posting and noticed the attachment in the left hand corner,Thank you sharing your photo with us,Slim never goes on here but occasionally ask me why i am laughing and I read out to him little bits.
He asked me to personally say how sorry he was for your loss,

I hope you keeping well and you are in our…[Read more]

how about
YESTERDAY
never a truer word sung by Matt Monro

DAY

Hi Amelie
It is nice to hear something positive,it was something he dreamed of and you made it come true,I like to think some good comes out of bad things even if it is only a learning curve.

I hope both of you have a long wish list and you make every day count.
When my husband was first diagnosed my thoughts were we are so lucky,we have done…[Read more]

Hi Paul
Have a drink while you can,it is allowed because your taste buds,will change some times drastically,my hubby has always liked his wine,and G&T does not like anything now LOL more for me:-P

Good luck with your treatment Eve

how about DELINEATE
Cheated a bit Slims the brains in the family
I have started reading some post out to him though,this morning he was as shocked as I was about Peter,but I think Min would like us to post as usual
Eve

ATE

Oh Min
I am crying as i post so don,t worry if it does not make sense,So so sorry,I just cannot believe it,I know it can happen very quickly,but he was still was walking about.I thought he was going to get over this one.
My heart goes out to you,I just wish I could do more.
All my love Eve
Min I just keep reading your post,so have come back on…[Read more]

what can I say except I am a woman.I have the right bits,just not working Eve

Hi Sarah
Glad to see you are holding up,tell us about your grandchildren. Eve

Bridget you have made me cry,and i have broad shoulders,Bridget do as they ask ,
Go to the hospice and let them get your pain under control.
You have always told us no one should be in pain time to walk the talk,
hugs go out to you Eve

Hi
I thought it had to be together eg:ESS ———-BLESSED.
i had trouble too Eve

Hi Paul
I am a carer to husband Slim,I sent you an email to say something wrong with your posting,other wise a lot more people would be giving you a welcome nod,no one seems to be able to reply to it.
My husband was on cdt to your cdr on myeloma trials,most people take revlimid before bed time helps you sleep.Specially after 4 days of dex you…[Read more]

Dai i do not know why you expect to be informed you only the patient,it does not matter that you have been waiting all day for something and it,s been over ruled by some one further up the ladder and no one has told you,just remember you are now an institutionalised patient:-P
I am counting those days to your holiday now .Eve;-)

Hi All
Must admit I never got pocket money,but I can remember going to the pictures on a Saturday morning,I think thats were my love of western come from,but my big thing was Flash Gorden,he was always on the point of being killed and you had to come back next week to see what happened.!
Talking about cigarettes we could buy looses I know they…[Read more]

Hi Min
Hope Peters picking up a little bit,I use to worry about Slim and his dignity So i tried to be around as much as possibly,but he was so ill,he cannot remember any of it.
I think this will alter his own perspective of illness,and i think your life will get a bit easier Min.
Might do Peter some good to keep a picture on your phone,then…[Read more]

I agree Min we should be able to double up at least 2 of those appointments,We rang last week just to remind them of things that needed to be done,and was told not to worry things were in hand!!!!
when we went on Friday no appointments had been made,nurse made blood and Zometa.Told me nothing had been arranged to late to get hold of anyone.
bank…[Read more]

Hi Gill

I do feel for you,at least you now know,and the battle begins,we are still waiting on MRI scann date for this Sunday,then hospital appointment for everyday except Thursday,have just worked out the mileage and we will be doing 210 miles to and fro that week.

I do not know which is worst knowing or waiting,Slim seem to take it in his…[Read more]