eve replied to the topic it is back in the forum Treatment 14 years ago
Hi Sarah
Just putting the same message on here in case you miss the one on b badge. Hang in there Sarah it is 3 am when you sitting there wondering how this will turn out,worst time, Awful time,thinking of you.Eve
eve replied to the topic BLUE BADGE in the forum Carers 14 years ago
Hi Sarah
They can do so much these days,I am thinking about both of you,i try to hang on to the believe that were there is life there is hope.
Sarah,be strong for Gordon,He has to believe he is going to make it.
I look at Slim now and think about those days in ITU.my heart goes out to you. love Eve
eve started the topic Apprehensive. in the forum Carers 14 years ago
Hi Everybody
I wonder if any of you carers can help me out.
Slim see,s the consultant on Friday,he just coming to the end of his 6 cycle on CTD trials. I know every thing is going in the right direction,as I make sure I collect all paper work concerning results,the only one I do not know about is latest bone marrow results.:-)
So why do I…[Read more]
eve replied to the topic Kidney Failure in the forum Related conditions 14 years ago
Hi Martin
Know one can answer your question,!!! it would not matter if your dad was young or old,the fact is how much fight has he in him,I would agree with Min,we do not give enough credit to older people.Do not write them off!!!!
Jo is a fine example of having Myeloma,with kidney damage,and she seems to have a good quality of life.
At the…[Read more]
eve replied to the topic just popped it to say hallo in the forum Off topic 14 years ago
Hi David
So you had a lovely holiday.Did you see any motorhomes on the banks of the river,it should have been me,but must admit if Slim was well we intendered to do Norway and Sweden:-(
Have another lovely holiday with the family,nice to hear someone doing so well best wishes Eve
eve replied to the topic Just diagnosed in the forum Newcomers 14 years ago
Hi Peggy
Nice to see you have picked up a bit,its not to bad once you start with the pills,Slim is on myeloma trials ctd side he has to inject himself ever day,remember not to rub the site it will cause bruising!!.
no side effects with steroids!!!(not a little bit high):-P full of energy;-)
Enjoying food:-)well i believe you LOL.
Did you get…[Read more]
eve replied to the topic BLUE BADGE in the forum Carers 14 years ago
Hi Gill
Cannot agree more,at times i do not know how i would have managed our hospital parking,is so so so bad,plenty of spaces for staff,then patients,very little for disabled!!!
I do not use it when Slim uses Sticks because i know how my daughter feels about people using disabled spaces,my grandchild has a large chair and needs lots of…[Read more]
eve replied to the topic Chest diaphram pain in the forum Side-effects 14 years, 1 month ago
Hi Keith
Will be thinking of you,hope every thing goes your way for 2sct.
Best wishers Eve
eve replied to the topic it is back in the forum Treatment 14 years, 1 month ago
Hi Everybody
My little fix it was on prescription,I can only say it has worked,:-S 😛 🙂
just taken one heee that made you laugh.it does help.
I can honestly say normally do not touch tablets,but you cannot keep crying or raging,it worked for me!!!
Love Eve
eve replied to the topic Questions about stem cell transplant in the forum Treatment 14 years, 1 month ago
Hi Jet
I wish you all the luck in the world,it is good to see someone doing so well,
as you know from post some people struggle, when you are in this position it is not very nice!!!!!.
There is an old saying (who wants to live till there 90,the person who is 89) so I do not think it is different what ever your age,I think you are very lucky!!!
Eve
eve replied to the topic Gill Newly Diagnosed in the forum Newcomers 14 years, 1 month ago
Hi Gill
So glad your out of hospital,do not worry about the emotional side .
Just take things slowly and try to do a little bit more each day,if you feel tired give into it your body knows best in this case,you will get on your feet again,just takes sometime.:-)
Make sure your wonderful sister takes a break,she will find it takes a lot out of…[Read more]
eve replied to the topic it is back in the forum Treatment 14 years, 1 month ago
HI Sarah
Missed the post on Yorkshire did not show on emails either!!!!
Well at least Gordon tried it is very hard for them to admit they can no longer do things,i think that is why we have these battles with them,but it does show they are fighting this b—d Myeloma .
I take Citalopram 20mg,It does work stops you dissolving in tears,or…[Read more]
eve replied to the topic Interesting in the forum Off topic 14 years, 1 month ago
Hi Min
I could not get in to the link,my brainy laptop will not let me access it.
How are things going with you.?
Eve
eve replied to the topic BRIDGET ARE YOU OK in the forum Off topic 14 years, 1 month ago
Hi Jo and jean and you Bridget
Nice to hear from you jean,
Jo I know that area so well,Tyne-E-Pull,spelling not good,use to be outward bound centre for waives and strays like me.:-P lol thats going back years.
Colamundy nr Mold another place.loved Betsy coede,Dai will be able to spell those names correctly. Climbed snowdonia many times I…[Read more]
eve replied to the topic Gill Newly Diagnosed in the forum Newcomers 14 years, 1 month ago
Hi Gillian
Good to see your getting there,take any equipment they offer you,as you will need most things for a short while,and you can send them back,when you do not need them.
Slim did 22 days in hospital and was so so so glad to come home,progress was slow but little by little he is much better,and it does take it,s toll on the carer,it…[Read more]
eve replied to the topic Weight Gain in the forum Side-effects 14 years, 1 month ago
Hi Min
I am the same,if i do not eat Slim will not eat,hence the weight gain.
Three dogs seems like a good idea,eating waste and all that walking!!!!
Previously to this illness,i shopped once a week,now its every day,it is something that Slims taken over,spending more money and wasting a lot of time,but he enjoys something he has control…[Read more]
eve replied to the topic Hospital Praise in the forum Off topic 14 years, 1 month ago
Hi Eliz
I know it is unbelievable,nearly said some (miracles do happen) but thought better not.Called Slim in with bag of drugs in hand,saline drip first then Zomita,and while that was working,went over drugs with me,gave me blood results asked if any problems,even had a cup of tea!!!!!.that,s what i a service.
it took us both by surprise.eve
eve replied to the topic BRIDGET ARE YOU OK in the forum Off topic 14 years, 1 month ago
Hi Jo
Thanks for asking after Slim.
Bloods,kappa light chains all going in right direction,on 6 cycle of ctd.
So why am I not running round in circles cheering!!!!do not understand it myself,considering the position we were in a few months back.Slims slowly getting stronger.
Appointment end of July with consultant,bone marrow test will be…[Read more]
eve replied to the topic Weight Gain in the forum Side-effects 14 years, 1 month ago
Hi Everybody
I agree ,go with the flow,but what do you do when,you are a carer???
Slims lost so much weight with being so ill,it is very hard to feed him up,I buy all this lovely food,the fridge is so full with tasty morsels and he eats a bit and says (I have gone off this),I think to myself I cannot waste this and eat it,tried giving it to the…[Read more]
eve replied to the topic I Told You I Was Ill… in the forum Treatment 14 years, 1 month ago
Hi Dai
There,s me thinking you had gone off on holiday and not told us,in case we were jealous 😉
Glad your back,you have been missed(a little bit).:-)
These things do not go unnoticed when are lyric and musician man goes missing without a telling us:-( as they have chucked you out,bruised and batted, but fit for duty,we hope to be hearing…[Read more]